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Re: I want to give up if the lap is negative

From: frenchie (anonymous@obgyn.net)
Thu Feb 26 14:00:33 2004

Sherly:

Your symptoms sound very similar to mine before my lap. I had horrible cramping - so bad I thought I was dying. Once I almost passed out from the pain in the middle of a quickie mart and the ambulance came. Of course, they just told me, "sounds like bad menstrual cramping". Ugh.

Good for you for demanding that your doctor give you a lap. For me, personally, it was the only way to go. I think that birth control pills and even Lupron just mask the symptoms (if you are lucky) but they don't cure the disease. A lap, if done well, can remove all of the endo. Make sure your doctor is actually planning to remove the endo he finds while doing the lap. Some doctors will just note where it is and close you up again. I also had an endometrium tumor in my left ovary. My doctor removed it during the lap. The good news is that I no longer have any of the terrible cramps I had before I had surgery. (I am now posting again because I'm dealing with a few urinary/bowel problems that my doctors think might be endo again.) So there is hope for you after your lap!

There are web sites out there that actually walk you through a laparotomy and tell you what to expect. There are also web sites with good tips on how to prepare for a laparotomy. It's been several years since I looked at the sites so I don't remember where they are - sorry. Maybe someone else here has links to some web sites that can help you prepare for your lap. 

--
Frenchie


At Thu, 26 Feb 2004, Sherly wrote:
>
>Hi every one! I am new to this site endo is my best friend.  I feel I
>have so much to say because I thought I was weird and never met anyone
>with my situation.  I have visited several sites about endometriosis.  I
>wanted an answer.  Sometimes other people and the doctors I have seen
>make me feel that there is no hope but I keep praying and keep looking.
>I am 22 and I have endo since I was twelve.  Believe me nothing was done
>except telling me that it's ok to have pain during my period and that
>once I have a child the pain will go away.  It was a lie.  For 7 years I
>didn't know what was going on inside of me.  I was diagnosed with endo
>when I was 19.  However at 16 I started having pain every day whether I
>had my period or not.  Today, I am still in pain but I take control; I
>change doctor and demand that I take no more pill and narcotic and to
>have a laparoscopy to know where are the lesions and where to go from
>there.  I have a chocolat cyst (related to endo)in my left ovary.  I
>have to go for ultrasound and then lap.  I am not afraid but I am
>concerned, I don't know what to expect.  I feel depressed and I am tired
>I feel like giving up.  Can anyone please help me through this process?
>I will be very grateful Please.  The doctor want me to take lupron which
>cost $1,500 which I can't afford.  So I feel I have no choice; I am
>trapped.  Please write me anything that can help.  Thank you so much I
>am glad that I am not alone and that I am not abnormal or complicated
>like my parents pointed out.  This website is also helpful:
>http://www.CenterForEndo.comrd and I was alone.  Thank God for this site.



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