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Re: Experiencing a new pain...wondering if anyone else has this
From: Sherly (anonymous@obgyn.net)
Thu Feb 26 10:36:28 2004
Hi I have experienced the same thing. I am 22, have endo for 10 years
but diagnosed at 19. The pain is even worse when I have my period and
my legs are num. I don't know if the endo is in the rectal area but I
know it is not normal. I also have burning urination and painful
intercourse. It is hard for my husband to understand and it makes me
feel like I am not a normal woman. There is one thing that help me
though. It is ridicule but it helps. I ate peanut butter almost every
day and when I go to the bathroom it is easier for my intestin to
stretch because of the oil in the peanut. So that 's my help but I hope
you find some help and don't forget prayers open any door.
At Sat, 31 Jan 2004, Cheyenne wrote:
>
>Heather,
>
>I have pretty bad rectal pain as well, mainly while on my period or
>around my period. It hurts really bad to go to the bathroom. I was in
>the emergency room a while back because it hurt for me to pee. My
>doctor did say that I had endo on my bowels that he couldn't remove
>because he didn't want to damage anything. Nothing relieves my pain, I
>also take vicodin for pain and pretty much isn't doing anything for me
>anymore. I don't know what to tell you to do for the pain, I haven't
>been to my doctor in a while. Good luck and hope you feel better or can
>find something to help relieve it. Cheyenne
>
>At Mon, 26 Jan 2004, Laura wrote:
>>
>>Heather,
>>I have been experiencing the exact same kind of rectal pain that you're
>>describing. I know it's endo, although my doctor didn't find anything
>>during a lap last month (but he's incompetent for many reasons so I'm
>>not going back to him anyway.) Like you, my pain is much worse when I'm
>>on my period and like you it comes in waves or spasms.My doctor has
>>given me a few different kinds of arthritis medication for the pain,
>>which don't do very much. I think he gave me those meds because he
>>thinks it's just bad cramps, which I know it is NOT.
>>
>>Some periods the pain is so bad that I'm on the floor moaning, others
>>it's bearable. I've been taking a lot of herbs lately and that seems to
>>help with my periods. Also, I find it necessary to take an herbal
>>laxative during my period otherwise I won't be able to have a bowel
>>movement because my rectum is too spasmed.
>>
>>I feel bad for you that you don't have many options when it comes to
>>doctors--but in my experience the care I give myself (herbs, nutrition,
>>exercise) helps me more than anything my doctor can do, although the
>>amount of endometriosis I have must be tiny if the doctor missed it.
>>
>>Thanks Heather, I feel good knowing that someone out there is
>>experiencing the same weird thing I am. I try to describe it to my
>>family and they all think I'm crazy!
>>
>>Laura :)
>>
>>>At Mon, 26 Jan 2004, Heather wrote:
>>>>
>>>>Hello...I am new here. I had my first laparascopy and laparotomy at age
>>>>23, the doctor found cysts and a tumor, which were removed. At 32 I had
>>>>my second laparascopy and laparotomy and was diagnosed with heavy
>>>>endometriosis. The doctor told me after surgery that there was just too
>>>>much inside my pelvic area to remove it all, so he removed some and left
>>>>some, and that he felt we needed to see what happens. He said when it
>>>>starts to effect my everyday life we will look at the choices I have. He
>>>>has given me bentyl to relax my pelvic area when it gets bad ( doesn't
>>>>work well ) and vicodin for pain. I live in a rural area and the
>>>>doctors here are not that good, honestly. The OB/GYN is only in the
>>>>office closest to me on Fridays, every other week from noon until 3pm,
>>>>so you can get an idea of what I am dealing with. I had to travel 2
>>>>hours to get to the hospital where he is on staff for my surgery. He
>>>>can treat at the hospital closest to me but, doesn't do surgery there.
>>>>Anyway, I started having a pain a few years back, it actually feels like
>>>>there is a draw string on my rectum and it is being pulled from the
>>>>inside. It is a sharp quick pain that takes my breath away. Has anyone
>>>>felt anything like this? Now to expand on that, I am now having a
>>>>similar pain in my vaginal area. It takes my breath away and I have to
>>>>get into a tight ball to even get relief. They both only last for
>>>>seconds but, they come in waves, almost like a muscle spasm. I am only
>>>>33 and the pain didn't stop with the last surgeries. My doctor did the
>>>>surgery after I told him about the rectal pain but, he never mentioned
>>>>anything about possible bowel endo.
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