ENDO Messages for February, 2004: Re: Over it!

Re: Over it!

From: anonymous (anonymous@obgyn.net)
Wed Feb 25 07:52:18 2004

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Hi Crystal,

I can relate to you about being hesitant about Lupron. I still experienced pain while being on it the whole time. I am getting ready to have my fourth lap done next week. My first lap was done in Nov. 2002, and after surgery I took Lupron monthly for six months...the following month or two after discontinuing it, the endometriosis came back with a vengeance, so I had to have a lap done again in July 2003. My pain returned in September 2003, but I got my Lupron shots on Oct. 1, 2003, and I ended up having another lap in the middle of October. I am currently taking the Lupron shots once every three months and I am on my last month of it. Well, I went to the doctor two weeks ago, and the endo has come back once again, even while being on Lupron! I don't like the side effects of Lupron and I have maxed out on it anyways (I think you can only stay on it for up to a year). Lupron does cause weight gain, mood swings and my scalp hair has started to fall out too. I guess what I am trying to say, is that everyone reacts to Lupron differently and that endometriosis can still come back while on Lupron, as it did to me. Also, unfortunately, from what I understand, a hysterectomy does not cure endometriosis. My doctor has recommended that I possibly take the Depo-Provera shots or be on continuous birth control after surgery. Depo-Provera does cause weight gain and break-through bleeding, so I think I am going to try the continuous birth control first. I hope everything works out for you and you find the best treatment for your endometriosis :) Good luck!

Becky

At Wed, 25 Feb 2004, Heather wrote: >
>I really think you might want to rethink Lupron. I'm in the same boat
>as you 27, and no husband. I did the same stuff, 2 laps. I have been
>off Lupron for almost a year. The change in my life was incredible! I
>could live my life everyday with out ANY pain. This is something I have
>not remembered in almost 10 years. I have just started having pain
>again over the last couple of months, which I knew would happen. When
>you are in almost daily pain, one year pain free is a gift.
>I'm not going to tell you I enjoyed my six months on Lupron, it's better
>than the pain of Endo.
>At Tue, 24 Feb 2004, Crystal wrote:
>>
>>Let me begin by telling you a shortened version of my medical history.
>>Started period at age 14. Diagnosed with displaysia at age 21 in 1998.
>>Had 4 Leep procedures. Diagnosed with endometriosis in 2000. Have had
>>3 laps and in January of 2003 had uterine suspension for retroverted
>>uterus. I live in constant pain. Just came back from Dr. today and he
>>is sending me to a specialist who deals w/ endo. I have turned down the
>>option to take Lupron due to it's horrible reviews. I am at my wits end
>>on what to do. I am only 27 with no children or husband, so having a
>>child right now is out of the question. I am wondering if a
>>hysterectomy would be my best bet? I just want to be able to live a pain
>>free life, have pain free sex w/out the horrible bleeding afterwards. I
>>am on straight BC pills for 3 months and then have a period after the
>>4th month. It doesn't seem to be helping. Does anyone have any advice
>>on what to do.

Next message: anonymous: "Moody, need to vent"
Previous message: Mandy: "Re: When did your pain end with c.b.c.p.?"
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