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Re: Am I crazy or is this Endo?
From: Rachel (anonymous@obgyn.net)
Sun Feb 22 09:11:20 2004
Kelley!
I can't say I know exactly how you are feeling, because I have'nt been
through some of the crazy things you have. But I have been in the same
boats of going to many doctors, being on many different pills, having 9
surgeries not having to do with the Endometriosis that just made me
sicker, and having doctors diagnose me wrong and blow me off. And I'm
only 17! I've bene sick for about 5 yers now.
Your symptoms do sound like I have felt with my periods though. Every
month I kept on getting sicker than the one before. Now I'm at the
point that I get feeling really sick a week to two weeks before my
period. I get Nauseas, can barely eat, exhausted, weak, cramps,
terribly backache's, etc. Then when I have my periods they are never
long but I would always go where I would have one heavy day, then the
next day would be really light or none at all, then the next day it may
come back again...it's always weird!
That's really hard that you can't get to a doctor to help you! I tihnk
you could possibly have Endometriosis. A lot of the girls I have talked
to always had a hard time getting diagnosed and doctors telling thme the
wrong things. I'm sorry your having such a hard time! I actually just
had a laparoscopy a little over a month ago, and they found I had Endo,
then just last week I started a shot that was suppose to help it, well
now I feel worse than ever!
Since you ca'nt see a doctor, I guess I just adivse you to continue to
research online, and talk to others who have it. If you want to talk,
you can email me smily_rachel86@hotmail.com! Best of luck to you!
At Sun, 22 Feb 2004, Kelley wrote:
>
>Okay ladies.... I need your help. I have a crazy history and a husband
>who thinks I don't love him and I am so tired of feeling like crap.
>Okay, here goes....
>
>First period at age 12...it came on so bad that my parents actually
>thought I was dying. From then on, the first day or sometimes two or
>three, I was in bed with severe cramps and heavy bleeding. At age 17, I
>finally sent myself to an OB/Gyn and was put on Ortho-tricyclen to
>regulate my periods.
>
>It seemed to help somewhat. Periods still came heavy at least one day
>but lasted only four to five days instead of seven to eight. Then,
>because I inherited my father's ulcers and drink Maalox as part of my
>daily meal plan, the ortho didn't work when it should. (NOTICE ladies -
>antacids have same effect on bcp as antibiotics) So, at the age of 24, I
>was pregnant with my first child. A week and a half after finding out I
>was pregnant, I got sick. And I stayed sick the entire time. My doctor
>said that for some reason, my body essentially looked at the baby as an
>alien and decided to attack it. After an 18 hour labor that ended in
>emergency c-section, he said that it was possible that I had endo. He
>did nothing.
>
>I noticed from then on that when periods came, I got excruciating low
>back pain. I just associated this from the 18 hour labor. Yet it gets
>worse every month. Then, pregnant with my second child two years later,
>I was sick again, though even worse this time around. I had another
>c-section and made the easy choice of a tubal ligation. During the
>tubal surgery, I somehow got a staph infection in my kidneys. I was
>sent home then put back when it became evident that I was sick. I was
>given tranfusions for anemia, fluids to maintain hydration, and
>antibiotics to fight off kidney infection. My lungs became overworked
>and started filling with fluid. I was rushed to ICU where I had a
>wonderful diet, losing 35 pounds in less than a day when they drained
>all the fluid from my body (7 liters in 2 hours!!!)
>
>I went home thinking all my girl guts would now be normal. WRONG! Now,
>periods are getting progressively worse. Usually would have one light
>day then one very heavy day then three more lighter days. Now I am at
>two VERY heavy days - thought I actually passed a piece of my liver last
>month. The cramps are very bad. The backache is terrible. I am
>constantly tired. I can only have maybe one bowel movement per week. My
>sex drive is shot (husband thinks its him). I am constantly nauseated.
>And to top it all off, we just moved to South Korea with my Army husband
>and we can't get an appointment with any of the doctors to find out what
>is going on.
>
>I think he thinks I am just whiny. I had my annual pap three months ago
>and was told that it was abnormal. No real concern they said, just be
>sure to follow up with new doctor in three months to rule out anything.
>It feels like I rotting from the inside out and everyone seems to just
>blow me off. I am waiting for someone to suggest I get some happy pills
>because I must surely be crazy thinking that something is actually
>wrong. But it just doesn't seem right that at least two days out of
>every cycle I am soaking not only an ultra tampon but a maxi pad as well
>in less than an hour.
>
>Somebody tell me if I am crazy or not!!! I am so tired of feeling like
>crap. After two very awful pregnancies where I was constantly sick, I
>feel that I've had my share of sickness and pain. ANY advice would be
>appreciated.
>
>Thanks!!! Kelley
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