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Re: Missing Ovary?From: Amy (anonymous@obgyn.net)Sat Feb 21 08:47:28 2004
At Tue, 7 May 2002, anonymous@obgyn.net wrote: > >Elise, I certainly hope this is getting worked out. Hardly the kind of >stress you need post-surgery! > >See what your doctor says, but I'd really recommend seeing another >doctor, preferably an RE who does a lot of these surgeries. The thing >that worried me was that you said your doctor "drained" the endometrioma >on the intact ovary. Maybe this is just a semantic confusion, but >skilled surgeons will excise an endometrioma, while leaving the ovary >intact. Draining it often does little good--it will grow back. The >entire wall of the endometrioma needs to be removed (and this can >require skill, since it is closely intertwined with the ovary--"like >pitting a mango," my RE said--the endometrioma was inside the ovary) to >be effective. You might want to ask your dr. or another one about the >reasons for draining it rather than removing hte endometrioma, and be a >bit skeptical if you hear that it just couldn't be removed without >taking the whole ovary. That CAN be true, but experienced surgeons can >often save much of the ovary. > >Good luck. I hope the confusion over your other ovary gets resolved. > >At Mon, 6 May 2002, Elise wrote: >> >>So if your ovaries were stuck to the pelvic wall, did they give you pain >>from being stuck in that position? Mine are NOT missing on the >>untrasound - just in real life. The doc could not "find" one of the >>ovaries when he looked with the lap - but it DID show up on the sono >>last week. What did they do when your ovaries were stuck to the >>abdominal wall? How did you know? Could they tell by the sono or only >>through surgery? >> >>In all fairness, this only happened on Friday and of course it took me a >>while to wake up so I was not able to talk directly with the Dr. I have >>asked his office to have him call me today, but he has not done so yet. >> >>I do like my Dr. and I am really glad he did not go ahead and remove >>the really gross, endometriosis-covered left ovary anyway as we had >>discussed. He chose to drain it and leave it and see what I wanted to >>do. I think that was very respectful of him to do that - and I am not >>sure all docs would have done the same. >> >>Since I have not been able to ask him directly, I am not sure why he did >>not sono me there on the table. I think they can do that? Then maybe he >>could have figured out where the missing ovary was - or wasn't. >> >>Thanks for any info about this unusual situation!!! >> >>At Mon, 6 May 2002, Mindy wrote: >>> >>>They may be attached to something in an inconspicuous place in the >>>abdomen!!!! Mine were attached to the pelvic wall, but I don't recall >>>either of them being missing on the ultrasound. I am sure you would >>>know if you have one removed! I hope! >>> >>>Mindy >>> >>>At Mon, 6 May 2002, Elise wrote: >>>> >>>>You are right, it IS really bizarre! >>>>My husband got transferred last year and I had to leave the doc who did >>>>the c-section. >>>> >>>>But the sono was done just recently at the same doctor's office who also >>>>did this lap. It was done by a tech rather than the doctor, but it was >>>>at his office. I was looking at pictures of the sono 6 wks ago and 2 >>>>wks ago just prior to the surgery. I know he has many patients, so he >>>>might not have remembered the sono results when he was doing to lap. >>>>But surely something ought to be there??? It was on the sono! >>>> >>>>He did admit it might be there somewhere, but since I had not had a >>>>bowel prep he did not want to do lots of exploration. The photo of the >>>>area looks clean as a whistle! There is NOTHING in that space - not even >>>>adhesions. >>>>He said if he does any more he wants to "open me up" rather than use the >>>>lap. Since I have so many adhesion problems already, I am not wanting >>>>to do that. But if my ovary is "stuck" somewhere, and if getting it >>>>free would relieve my pain, I guess I may have to do it - IF that is the >>>>problem. >>>>Elise >>>> >>>>At Mon, 6 May 2002, Natalie wrote: >>>>> >>>>>That is REALLY bizarre! I can't imagine how a doctor would be unable to see >>>>>your ovary no matter where it was inside your body. Of course, I have no >>>>>medical training. Do you think it is possible that either of your doctors >>>>>(for the c-section or the lap) may have removed it without your knowledge? >>>>>Scary thought. >>>>> >>>>>I guess you had two different docs doing the sono and the lap? Did you tell >>>>>the doc doing the lap that it had appeared in the sono the previous week? >>>>> >>>>>Natalie >>>>> >>>>>> -----Original Message----- >>>>>> From: endo@obgyn.net [mailto:endo@obgyn.net]On Behalf Of Elise >>>>>> Sent: Monday, May 06, 2002 2:18 PM >>>>>> To: Multiple recipients of list ENDO >>>>>> Subject: Missing Ovary? >>>>>> >>>>>> I have tried searching to see if others have had a similar experience, >>>>>> but I can't seem to find anything. >>>>>> >>>>>> I just had my second laparoscopy for endo last Friday. The prior one >>>>>> was done over ten years ago and I have had two pregnancies in between >>>>>> both via IVF with very good quality eggs being harvested from BOTH >>>>>> ovaries >>>>>> >>>>>> We knew going in that I had a major endometrioma on my LEFT ovary and >>>>>> that the same ovary has had a history of endometrioma as far >>>>>> back as the >>>>>> very first lap over ten years ago. My RIGHT ovary, according to the >>>>>> sono had a fluid-filled cyst, but appeared OK otherwise. >>>>>> >>>>>> When the doctor did the lap, however, my RIGHT ovary was nowhere to be >>>>>> found. It had shown up on sono just the previous week, but now it is >>>>>> NOT THERE. >>>>>> I want to know where my missing ovary could possibly be??? The doctor >>>>>> wondered if I had it removed previously and just forgot. I >>>>>> am certain I >>>>>> have not had it removed. >>>>>> >>>>>> Also, I have been having a series of random, severe abdominal pain >>>>>> attacks (similar to the pain of appendicitis) since 6 weeks >>>>>> post partum >>>>>> following my c-section 20 months ago. All 3 of my other children were >>>>>> vaginal with no complications. These attacks have sent me to the ER >>>>>> multiple times only to have all tests done and no diagnosis. I have >>>>>> even seen a specialist who checked out my bowel and found no problems. >>>>>> After 3-5 hours, the pain usually subsides and I am fine >>>>>> until the next >>>>>> attack. >>>>>> >>>>>> Question: Could my strange, undiagnosed intermittent pain attacks be >>>>>> caused by my "missing" ovary being stuck with adhesions in >>>>>> some unusual >>>>>> place/position? >>>>>> >>>>>> Alternate question: Could me ovary be really be completely GONE? How >>>>>> could this happen if it was never surgically removed? >>>>>> >>>>>> -- >>>>>> Elise in Texas >>>>>> >>>>-- >>>>Elise in Texas >>>> >>-- >>Elise in Texas >> Apparently I too have a missing ovary. It was there ten years ago and now cannot be found by Ultra Sound. But I do have a mass on the inside of my right ovary. I have been referred to a specialist but I was wondering about surgery. I was never able to conceive do to a history of endo, cyst, scaring ect. I am 38 years old and Have adopted three wonderful kids. I am thinking of asking them to just take it all, no laporscopic surgery. I don't want to have to do this again. Any opinions?
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