ENDO Messages for February, 2004: Re: at my wits end

Re: at my wits end

From: S.H. (anonymous@obgyn.net)
Fri Feb 13 10:29:23 2004

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In reply to: jamie: "at my wits end"
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This is a pretty common problem in our house, too. I've had endo since my husband and I were in college so he knew what he was getting into before we were married (or so I thought). I had a recurrence a year ago and had surgery and lupron. The endo is very deeply imbedded in my uterus near a blood vessel and is inoperable. I'm supposed to hurry up and have kids so i can have a hysterectomy ASAP (I'm 26 and we have no kids yet). I'm in constant pain and I know that there isn't much that can be done so I try not to complain about it or let it incapacitate me (as much as possible anyway). But because I don't complain, my husband assumes that I feel fine. He'll complain about the house being messy or the dishes not getting done as if I'm lazy instead of thinking that I might not feel well. He says he feels like he's 'not being given a choice' about about having kids as if I am! I'm the one in pain but he feels forced. I don't want to make it sound like my husband isn't a good person or that he's completely insensitive, but I think it's the nature of this illness that people who don't have it can't possibly understand. Sometimes our doctors don't even understand. I just don't want you to think that you're alone in this. I think there are many of us with the same problem, be it with a boyfriend, parent, or husband. You're hubby needs to understand that you'd like to be the way you were before, too. No one would like a cure more than any of us who live with it every day. Good for your doctor for sticking up for you, though.

At Fri, 13 Feb 2004, jamie wrote: >
>It has been awhile since i have posted though i read everyday,and i am
>grateful to know that we understand each other. Just to update i have
>had 9 surgeries in less than 2 years three
>major,hysterectomy,oopharectomy,and just recently the appendectomy...all
>were covered in endo (the appendix had it inside not visable outside) My
>follow up i was told it may be in the bowel. My gyn had to bring my
>husband in last week to explain this because he cannot grasp any of
>it.After talking the plan is to go back to the G.I. for an endoscopy
>and another colonoscopy(my third) as well as pain maagement painkillers
>and antidepress also was taken off hrt so now we once again have full
>swing menopause . My gyn is wonderful have been with him for 6
>years...my doc asked my husband what do you want his reply"I want her
>the way she was,before getting sick" needless to say that blew my gyn`s
>mind he told him he was going to put him on some meds(had to say pretty
>bold).I am currently working part time to none because my symptoms are
>worsening, i went to my family dr yesterday who states she is almost
>positive that fibromyalgia has shown itself..do to the long history of
>symptoms and both my mom and sisters have it(i am 32)i will now see a
>rheumatologist...imagine my thought of having to once again tell my
>husband there is more. He did not take it well(we have been together 18
>years next month-highschool sweet. married for 12)he once again told me
>you can get healty again...does anyone have any advice or going through
>same situation I would love your feedback or a penpal experiencing this
>as well. I know there are many off worse than me...however sometimes it
>becomes a bit overwhelming.
>
>Here is to a great support group.
>
>--
>jamie a
>

Next message: anonymous@obgyn.net: "Re: question about Laproscopy"
Previous message: anonymous@obgyn.net,: "Re: To anybody considering Lupron for their treatment"
In reply to: jamie: "at my wits end"
Next in thread: Robin: "Re: at my wits end"

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