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Re: Post Hysterectomy Endometriosis
From: anonymous (anonymous@obgyn.net)
Tue Feb 10 13:24:39 2004
Hi,
I was wondering if anyone has tried the natural progesterone/estrogen
that is available in suppository form? Natural hormones are made up by a
compounding pharmacy and are covered by major insurance. Natural
hormones, when balanced by an experienced medical professional, do not
cause side effects. They are estradiol, estriol and progesterone-the
same hormones (bio-identical) produced by the female body.
Here is one site for information- The name says pms treatment but they
treat many different womens problems. Their are probably clinics using
natural hormones all over the US! http://www.pmstreatmentclinic.com
Maybe worth looking into the natural hormones instead to balance your
hormones after hysterectomy & not have to deal with the dangers of
synthetic.
At Tue, 10 Feb 2004, anonymous@obgyn.net wrote:
>
>At Wed, 19 Mar 2003, Brenda wrote:
>>
>>At Mon, 21 Oct 2002, D.N. wrote:
>>>
>>>Hi,
>>>
>>>I am sorry that you continue to have problems after your hyst. Did they
>>>remove your ovaries too? A complete hyst generally means uterus only. If
>>>you still have your ovaries, that could be a big part of the problem. If
>>>you had your ovaries removed, you might have ORS or ovarian remnant
>>>syndrome. If you search for that topic here, you will find that I have
>>>posted a lot on that problem. Let me know if you have any questions.
>>>
>>>A hyst, even with ovaries removed is not necessarily going to get rid of
>>>endo. Even if you have a microscopic amount left, it can continue to
>>>grow.
>>>
>>>If your doc is too busy to answer your questions, then you need to find
>>>one who will listen. Endo can continue after a hyst and ovaries
>>>removed.
>>>
>>>Best wishes,
>>>D.N.
>>>
>>>At Mon, 21 Oct 2002, Linda wrote:
>>>>
>>>>At Mon, 24 May 1999, Rhonda wrote:
>>>>>
>>>>>I had a complete hysterectomy 6 years ago due to endometriosis. The
>>>>>endo returned several years ago. 18 months ago I had laser surgery. The
>>>>>problem has increased in serverity until now it is almost unbearable
>>>>>most of the time. My stomach bloats (2-3") and is hard to the touch and
>>>>>I feel "full" or constipated although I am not. I have gained more than
>>>>>10 lbs in the past 6 months. The pain is located in one general area
>>>>>with some more specific areas more severe than others and some stabbing
>>>>>pains. Any abdominal exam will cause excrutiating pain for days. I am
>>>>>currently on hormone replacement therapy..
>>>>>20 mg estrogen every 2 weeks
>>>>>100 mg nandroline 4-5 weeks
>>>>>Over the counter pain medication does not ease the pain. Stronger
>>>>>medications remove the quality of life I would like to enjoy. Although
>>>>>lately I have taken percocet or loritab to reduce the intensity of the
>>>>>pain. My doctor has recommended Depot Lupren 3.75 for 1 month to see if
>>>>>the pain is alleviated? To be continued if the situation is improved. I
>>>>>am worried. My post surgery hormone adaption/adjustment almost drove me
>>>>>insane.
>>>>>Do I have any other choices? What are they?
>>>>>Thanks for allowing me this forum.
>>>>
>>>>I just came from my OBGYN after having laproscopy surgery for
>>>>endometriosis and she wants to put me on Lupren 3.75 also.. why did i
>>>>have surgery? I thought that was to take care of the endometriosis...
>>>>Now i have to get this Lupren and have a hystorectomy... what was the
>>>>point and why do i have to be on Lupren?
>>>>No answers from the Dr. she is way to busy to answer me.
>>>>
>>>>--
>>>>thanks
>>>>Linda Stengel
>>>>
>>I was told that I needed to go on lupren for pelvic pain for 6 months to
>>see if it helped the pain.I have been in pain for at least 3 years in my
>>lower right pelvic area.I have had 2 laparoscopy's and the doctor told
>>me that he had seen a cyst that burst on my right ovary the first time
>>and adhesions the second time.I am worried about going on lupren because
>>it gives you menapauseal symptoms,and I am only 37 years old.Can anyone
>>help me with this?I need more info?Please.Thank You
>
>The first thing that scares me is how you start your message:"I was
>told...." It should be, "MY doctor and I agreed that..."Take
>responsibility for your health!
>~!~~~~~~I had a hysterectomy at 25 for stage 3 endometriosis. They left
>one ovary. 8 months later, I had that ovary removed; it was covered in
>endometriosis-only 8 months after my hysterectomy! I am now 27 and STILL
>having pelvic pain. Every doctor I have gone to lately has suggested
>Lupron. I SAY NO!
>I was finally referred to a clinic at the University of North Carolina,
>the Chronic Pelvic Pain Clinic.
>Think about this:
>Doctors that are OB/GYN mainly deal with OB issues, birth control,
>yearly checkups, NOT endometriosis/pelvic pain!
>Ever notice all the pamphlets, pens, notepads, posters, etc. with name
>brand drugs on them? Are they just there because the doctor can't
>decorate her/himself? NO! They are advertisements, and docs sometimes
>get kickbacks for prescribing these drugs.
>Are you REALLY being listened to? Do you leave the office feeling like
>you and your doctors are accomplishing something, or do you leave
>feeling full of questions and concerns?
>Treating any type of pelvic pain is not easy. It involves medical and
>surgical aspects yet lifestyle changes, diet changes, psychotherapy,
>spirituality, alternative therapies are often ignored.
>Lupron was first suggested to me about 5 years ago. My answer remains
>the same: "NO! HELL NO!!"I have challenged every doctor who has brought
>Lupron up after my hysterectomy and oopharectomy (ovary removal): "If I
>am already menopausal, by virtue of surgical menopause, what good will
>chemical menopause do?" Finally, one doctor commended me for my
>decision. Citing the simple fact that unfortunately even some good
>doctors are spreading the advertisements for Lupron and other such
>drugs, when they are really unnecessary.
>Trust me, menopausal symptoms are not scary! I had hot flashes & night
>sweats. Nothing compared to PMS or menstruating!
>If you are so uncertain of something your doctor suggests, GET ANOTHER
>DOCTOR! Research EVERYTHING, QUESTION EVERYTHING! Do not allow yourself
>to walk around blind and stuff your body with drugs or surgeries you may
>NOT need- or may cause you more problems in the future! One thing I have
>had to terms with, I may always have pelvic pain. It may REALLY be in
>my head!
>*GASP* Yes I did say that.
>Ok, here's my reason: I have had 4 laps, one hysteroscopy& one
>hysterectomy. That is 4 passes through my belly button, into my pelvic
>area, with lasers and other instruments. That is 4 sets of scars thru
>the bellybutton, scar tissue, adhesions, etc. Then lower on my pelvic
>region is the scar 5in wide 5 in deep for my hysterectomy, and the
>little poke in the middle for my hysteroscopy. I have spent over 4
>months recovering from these surgeries. Do I not have scar tissue?
>Nerves that misfire, possibly constantly? Could these nerves, over time
>not know anything other than pain? Could my brain not get a signal other
>than pain, even if I have healed? YES! Could it be in my head, yes!
>Could it be adhesions? Yes! Ok....so now what?
>I work on keigels. I insert a bit of lidocaine up my crotch at bedtime.
>I smoke pot. I take natural supplements (Turmeric for pain, milk
>thistle, flaxseed oil, lethicin, B complex, black cohosh, sarsaparilla,
>garlic, lysine-is a godsend, etc. I am back on estrogen (ortho-evra,
>not one hot flash within 24 hours of sticking it on!) I have also
>adopted the anti-yeast diet for the next 30 days. I journal, meditate,
>scream and vent appropriately.
>Am I done in my journey? No. Am I still frustrated? Hell yes. But not
>as much as before. I am taking a whole-body approach to healing.
>If you wanna talk, email me at: Pixilated76@aol.com!
>
>--
>Normal is a setting on the washing machine.
>
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