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Re: Treatment has not helped my endometriosis! Advice? Anyone?From: anonymous (anonymous@obgyn.net)Sun Feb 8 19:47:40 2004
At Sun, 8 Feb 2004, anonymous wrote: > >Actually, Jennifer, I haven't had very many tests since the hysteroscopy >and laparoscopy. (Not that I didn't want to - just no doctor ordered >any!) About four weeks after starting the Lupron, I noticed that my legs >and ankles were really swollen and that I was not urinating very often. >So I called my ob/gyn and she put me on spironolactone, a diuretic. I >took it about 5 weeks, it seemed to help. But then it stopped working. >She upped the dose to twice what I was taking and that helped for about >three weeks. Then, I got gout in my left big toe. >So I called the doctor again, and was switched to Lasix, which I have >been on ever since, even though my periods have resumed. >She also told me to take black cohosh (Sp?) for the hotflashes, which >did nothing to help that side effect. >When the edema didn't go away, even with the lasix, I saw her again, >then called her office due to numerous other side effects. Finally, I >think the ob/gyn got sick of me...she didn't want to see me in her >office, and seemed really annoyed that I would dare to call her or her >office with questions. Another problem was that the office staff would >mistake my messages; I would tell them the problem and they would mess >up the message and the doctor would call me saying "No, we can't do >this." And I would be like "What are you talking about, that was not why >I called. My question was the OPPOSITE of what you were told." Other >times, my messages were "lost." Grr... So, in October, she told me to >see my general practitioner, because there was "nothing else she could >do for me." >So, I went to the GP, who tested me for heart failure (talk about scary) >and that was negative. Phew. She also ordered a bone mass test. They >discovered that the base of my spine was thinning. Great. Like I don't >already have a family history of osteoporosis, which I told my ob/gyn >about when deciding to take Lupron? I also took massive amounts of >calcium when I was on the Lupron and drank a LOT of milk/yogurt. > >Anyway, the GP reported the findings to the ob/gyn, who called me, said >that well, she was not concerned about the amount of bone loss, but if I >was to stay on Lupron (in nasal spray form), then I would have to take >HRT. A good friend of mine had a bilateral masectomy 2 years ago as a >result of taking HRT. My ob/gyn was saying that I could stay on Lupron >"Indefinitely" as long as I also took the HRT. Now, everything I've >read says that you can't take HRT forever, and that if you do, there are >some nasty side effects...like breast cancer. So, why would I want to >go through more Lupron, with add-back, and face further health risks? >Seems to me like my doctor has her head up her you-know-what! I mean, >she would cut off my breasts because the Lupron and HRT caused a >problem, but she won't do a hysterectomy to avoid all that?!? Does that >make sense to anyone out there? > >Anyway, I am going back to my GP tomorrow, telling her >1) that I do not want to take the Wellbutrin anymore >2) that I want a referral to a reproductive endocrinologist >and 3) That I want bloodwork for thyroid issues and perhaps hormonal >stuff, if possible, also metabolic stuff, just to see what the heck is >going on with me. >IF they won't do anything, then I will find a doctor who will. >I have had enough of this. >I see the ob/gyn in March. I am sure she is going to be thrilled to see >me and hear what I have to say.
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