 |
 |
 |
|
|
|||
|
|
||||
|
||||
|
|
Re: Treatment has not helped my endometriosis! Advice? Anyone?From: anonymous (anonymous@obgyn.net)Sun Feb 8 18:50:45 2004
Actually, Jennifer, I haven't had very many tests since the hysteroscopy and laparoscopy. (Not that I didn't want to - just no doctor ordered any!) About four weeks after starting the Lupron, I noticed that my legs and ankles were really swollen and that I was not urinating very often. So I called my ob/gyn and she put me on spironolactone, a diuretic. I took it about 5 weeks, it seemed to help. But then it stopped working. She upped the dose to twice what I was taking and that helped for about three weeks. Then, I got gout in my left big toe. So I called the doctor again, and was switched to Lasix, which I have been on ever since, even though my periods have resumed. She also told me to take black cohosh (Sp?) for the hotflashes, which did nothing to help that side effect. When the edema didn't go away, even with the lasix, I saw her again, then called her office due to numerous other side effects. Finally, I think the ob/gyn got sick of me...she didn't want to see me in her office, and seemed really annoyed that I would dare to call her or her office with questions. Another problem was that the office staff would mistake my messages; I would tell them the problem and they would mess up the message and the doctor would call me saying "No, we can't do this." And I would be like "What are you talking about, that was not why I called. My question was the OPPOSITE of what you were told." Other times, my messages were "lost." Grr... So, in October, she told me to see my general practitioner, because there was "nothing else she could do for me." So, I went to the GP, who tested me for heart failure (talk about scary) and that was negative. Phew. She also ordered a bone mass test. They discovered that the base of my spine was thinning. Great. Like I don't already have a family history of osteoporosis, which I told my ob/gyn about when deciding to take Lupron? I also took massive amounts of calcium when I was on the Lupron and drank a LOT of milk/yogurt. Anyway, the GP reported the findings to the ob/gyn, who called me, said that well, she was not concerned about the amount of bone loss, but if I was to stay on Lupron (in nasal spray form), then I would have to take HRT. A good friend of mine had a bilateral masectomy 2 years ago as a result of taking HRT. My ob/gyn was saying that I could stay on Lupron "Indefinitely" as long as I also took the HRT. Now, everything I've read says that you can't take HRT forever, and that if you do, there are some nasty side effects...like breast cancer. So, why would I want to go through more Lupron, with add-back, and face further health risks? Seems to me like my doctor has her head up her you-know-what! I mean, she would cut off my breasts because the Lupron and HRT caused a problem, but she won't do a hysterectomy to avoid all that?!? Does that make sense to anyone out there? Anyway, I am going back to my GP tomorrow, telling her 1) that I do not want to take the Wellbutrin anymore 2) that I want a referral to a reproductive endocrinologist and 3) That I want bloodwork for thyroid issues and perhaps hormonal stuff, if possible, also metabolic stuff, just to see what the heck is going on with me. IF they won't do anything, then I will find a doctor who will. I have had enough of this. I see the ob/gyn in March. I am sure she is going to be thrilled to see me and hear what I have to say.
|
|
Return to ![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)
Technical Problems: webmaster@obgyn.net
Last Updated: Wed Dec 2 03:46:10 2009
Women's Insurance Checklist from Auto Insurance Quote
home | medical professionals | women | industry | forums | international