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Re: Experiencing a new pain...wondering if anyone else has this
From: Jennifer (anonymous@obgyn.net)
Sat Jan 31 15:14:03 2004
At Sat, 31 Jan 2004, Fran wrote:
>You can try some things to improve your digestive system/elimination process... it may help minimize pain, and you may need some more potent painkillers to give you some relief.. If it is switching to your bladder/issues with peeing, consider getting an ultrasound/exam to see if it is pain coming from uterus pushing bladder, or directly the bladder. And discuss the possibility of IC with your doctor --- .
Aloe vera juice, probiotics, magnesium supplements, a metimucil, ...etc.
eat easily digested food while it is worse, slightly boiled green
vegies...
if you can. (sounds silly but i sometimes tried not eating much just
before so I would have my bowels fairly empty and when my periods were
really bad, couldn't eat anyway... ) obviously not a long term
solution, but may help survive a cycle or two..
best,
Jennifer
>At Sat, 31 Jan 2004, Cheyenne wrote:
>>
>>Heather,
>>
>>I have pretty bad rectal pain as well, mainly while on my period or
>>around my period. It hurts really bad to go to the bathroom. I was in
>>the emergency room a while back because it hurt for me to pee. My
>>doctor did say that I had endo on my bowels that he couldn't remove
>>because he didn't want to damage anything. Nothing relieves my pain, I
>>also take vicodin for pain and pretty much isn't doing anything for me
>>anymore. I don't know what to tell you to do for the pain, I haven't
>>been to my doctor in a while. Good luck and hope you feel better or can
>>find something to help relieve it. Cheyenne
>>
>>At Mon, 26 Jan 2004, Laura wrote:
>>>
>>>Heather,
>>>I have been experiencing the exact same kind of rectal pain that you're
>>>describing. I know it's endo, although my doctor didn't find anything
>>>during a lap last month (but he's incompetent for many reasons so I'm
>>>not going back to him anyway.) Like you, my pain is much worse when I'm
>>>on my period and like you it comes in waves or spasms.My doctor has
>>>given me a few different kinds of arthritis medication for the pain,
>>>which don't do very much. I think he gave me those meds because he
>>>thinks it's just bad cramps, which I know it is NOT.
>>>
>>>Some periods the pain is so bad that I'm on the floor moaning, others
>>>it's bearable. I've been taking a lot of herbs lately and that seems to
>>>help with my periods. Also, I find it necessary to take an herbal
>>>laxative during my period otherwise I won't be able to have a bowel
>>>movement because my rectum is too spasmed.
>>>
>>>I feel bad for you that you don't have many options when it comes to
>>>doctors--but in my experience the care I give myself (herbs, nutrition,
>>>exercise) helps me more than anything my doctor can do, although the
>>>amount of endometriosis I have must be tiny if the doctor missed it.
>>>
>>>Thanks Heather, I feel good knowing that someone out there is
>>>experiencing the same weird thing I am. I try to describe it to my
>>>family and they all think I'm crazy!
>>>
>>>Laura :)
>>>
>>>>At Mon, 26 Jan 2004, Heather wrote:
>>>>>
>>>>>Hello...I am new here. I had my first laparascopy and laparotomy at age
>>>>>23, the doctor found cysts and a tumor, which were removed. At 32 I had
>>>>>my second laparascopy and laparotomy and was diagnosed with heavy
>>>>>endometriosis. The doctor told me after surgery that there was just too
>>>>>much inside my pelvic area to remove it all, so he removed some and left
>>>>>some, and that he felt we needed to see what happens. He said when it
>>>>>starts to effect my everyday life we will look at the choices I have. He
>>>>>has given me bentyl to relax my pelvic area when it gets bad ( doesn't
>>>>>work well ) and vicodin for pain. I live in a rural area and the
>>>>>doctors here are not that good, honestly. The OB/GYN is only in the
>>>>>office closest to me on Fridays, every other week from noon until 3pm,
>>>>>so you can get an idea of what I am dealing with. I had to travel 2
>>>>>hours to get to the hospital where he is on staff for my surgery. He
>>>>>can treat at the hospital closest to me but, doesn't do surgery there.
>>>>>Anyway, I started having a pain a few years back, it actually feels like
>>>>>there is a draw string on my rectum and it is being pulled from the
>>>>>inside. It is a sharp quick pain that takes my breath away. Has anyone
>>>>>felt anything like this? Now to expand on that, I am now having a
>>>>>similar pain in my vaginal area. It takes my breath away and I have to
>>>>>get into a tight ball to even get relief. They both only last for
>>>>>seconds but, they come in waves, almost like a muscle spasm. I am only
>>>>>33 and the pain didn't stop with the last surgeries. My doctor did the
>>>>>surgery after I told him about the rectal pain but, he never mentioned
>>>>>anything about possible bowel endo.
>
>--
>I read where you were hurting during your period I too was like that at one time
>I had read about a good calcium and got it and starting taking four at the beginning
>of my period and the pain disapeared.. If you think I can help you more let me know at my email address
>
--
Jennifer
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