ENDO Messages for January, 2004: Re: Lupron User

Re: Lupron User

From: theo (anonymous@obgyn.net)
Wed Jan 28 21:40:14 2004

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In reply to: shannon: "Re: Lupron User"

Lupron therapy -

I had Lupron therapy twice in my life. In 1993, I had one shot of Lupron which nearly drove me crazy. There was no addback therapy then, but I suffered from severe panic attacks, depression, self esteem issues, and all that stuff. One shot was enough for me.

Last year, I was admitted into the hospital with the worst right sided pain ever (worse than appendix) - my ob/gyn did an operative lap and found my right ovary and tube were fused to my uterus. She took both organs out and I knew that I never wanted to feel that pain again. My alternatives were hysterectomy or Lupron.

I chose Lupron and immediatly started to have hot flashes, moodiness, loss of desire, lack of interest in anything. I found some relief in therapy and anti-depressants (specifically Effexor). We started add back which helped a little, along with black Kohosh (sp?) I was also tired all of the time, weak and listless. I nearly broke off my engagement to my now husband. Each month I'd go in, I felt that I was poisoning myself. After the fifth month, I talked to my ob/gyn - actually sobbed..."I can't take this anymore!" She complimented me by saying that "you are strong enough to know when something is not right" - and even she was relieved that I stopped Lupron right then and there. I went back to the Pill and within 2 days, I started to feel normal again!

However, that therapy didn't buy me much time, within four months I started to have pain again - a lot due to adhesions. Last week, I had a lap that showed that I was riddled with endo and adhesions. Thus, the Lupron didn't work for me.

Now, my only alternative is to have my uterus removed, which I'm dreading dearly. But considering how much pain I have endured, and how this disease has hampered me in so many ways, I want to move on and put this behind me.

I don't want to discourage you from Lupron - it works for some women. Just please listen to your body...and your mind. I wish there was more effort in the scientfic community to cure this horrible disease - unfortunately, our alternatives are draconian and leave us weaker than ever.

I wish you the best on you treatment. Please remember to take a calcium supplement and once a day vitamins. This is critical to keep your body in balance during these times. Please let me know how you are feeling in a week or so...I maybe can give you some advice.

Bless! Theo

At Wed, 28 Jan 2004, shannon wrote: >
>The Lupron side effects have been tough to handle, but I feel that the
>long term fact that it may help will be worth it - if it does. I am
>having my 3rd shot tomorrow and will be talking iwth my doc about add
>back therapy. Anyone have any experience with this?
>Shannon
>
>At Tue, 27 Jan 2004, Senja wrote:
>>
>>I used Lupron about 3 years ago. It sounds like you are having sucess
>>managing your endo with it. I wasn't quite so lucky.
>>
>>I know that if the side effects are overwhelming your doctor may
>>reccomend addback to help alleviate them. This is where they give you
>>small doses of hormones. The problem with this is that the addback can
>>start the pain back up. You might want to talk to your doctor about it
>>if you are completely miserable.
>>
>>I know that I tok wet washcloths to bed with me, to cool myself after
>>the hot flashes at night, and I rarely took a hot shower when I was on
>>Lupron.
>>
>>I really can't help you with the moodiness, because I never got a handle
>>on it. I was a total B*tch while on it. YOu can take comfort in the
>>fact that if you're doing a 6 month course, it won't last forever.
>>
>>Honestly, I felt that the side effects were something I was willing to
>>live with, if the Lupron worked. Unfortunatly it didn't help me, and
>>one of the side effects was pretty unhelthy (I got some serious swelling
>>of the feet and ankles because of water retention.)
>>
>>I hope this helps.
>>
>>--
>>Senja
>>
>>At Tue, 27 Jan 2004, shannon wrote:
>>>
>>>I have been on Lupron for two months and I will be getting my third shot
>>>in three days. I have been having head aches, dryness, Horrible hot
>>>flashes, and moodiness. I have experienced no pain or bleeding since
>>>the shots started. I have been searching for lupron users and this is
>>>the first time i have found any hint of people using it. I was
>>>wondering what your experiences are and how things are going for you.
>>>also, what things are you doing to help the side effects subside?
>>
>>--
>>Senja
>>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>>"Life follows art; words can grow teeth
>>and eat tigers." - John Gardener
>>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>>

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In reply to: shannon: "Re: Lupron User"

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