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Re: Endo in bowels/bladder??
From: Eliza (anonymous@obgyn.net)
Tue Jan 27 21:00:27 2004
Hi Anita,
I had endometriosis in my colon. My doctors were reluctant to treat it
for fear of damaging my bowel. So I had a total hysterectomy plus
ovaries removed. The doctor was hoping that the drop hormones would
cure the rectal endometriosis on it's own. Three years later, I
developed an infection within the endometriosis which destroyed 8 inches
of my colon and rectum. I now have a colostomy. It is not as bad as I
thought it would be. There are ways that I can manage the colostomy so
I don't need a bag. The bottom line is that the endometriosis and it's
pain are gone. In your case, it might be worth having the endo removed
now, before it does too much damage. Then the bags will only be
temporary as you heal; instead of permanent like in my situation. Feel
free to email me.
Eliza
At Tue, 27 Jan 2004, anonymous@obgyn.net wrote:
>
>Hi Anita,
>
>I too have endometriosis on my bowels and I found laxatives to be a
>waste of time, as it sounds like you are. I did find lactolose very
>good, and after taking this for 2 months I now have normalish bowel
>function. It may be worth a try before you rush in to having major
>surgery.
>
>I also have endometriosis on my ovaries, and I am in pain almost every
>day, aswell as having long and heavy periods, so do really symapthise
>with you.
>
>Please try and consider some more options before surgery.
>
>Good luck and I hope your pain eases soon.
>
>Sharon
>
>t Mon, 26 Jan 2004, Chris wrote:
>>
>>Hi Anita, I can tell by your message that you are truely suffering.
>>Sometimes when we are suffering so badly all we want to do is hurry up
>>and have something done about it. If I was you I wouldn't settle for
>>what your doctor is suggesting without getting another opinion. That
>>surgery sounds very drastic and sounds like it could lead to more
>>problems down the road. Where are you from? I would ask some of the
>>ladies on this forum if they could give you the name of a good
>>endometriosis specialist in your area. It sounds like you really need a
>>specialist. I think you will be very happy if you did. Good luck, I
>>hope this helps.
>>
>>At Mon, 26 Jan 2004, Anita wrote:
>>>
>>>I was just wondering if anyone has had the endo spreading in their
>>>bowels and/or bladder.
>>>
>>>I have been told by my hospital that they think they have found endo in
>>>both. They are saying that they will have to open them up and remove
>>>the scar tissue and then give me a (temporary) bag on each while the
>>>holes they have made rest and heal.
>>>
>>>Now, it probably is needed as I am suffering big time with the
>>>excrutiating pain when I urinate and have constant constipation as my
>>>bowels seize up in sheer pain and refuse to move (even when I am
>>>surviving on a diet of green vegetables and fruit...mainly spinach and
>>>prunes - and still nothing happens!)
>>>
>>>Of course I then get really bloated, and this puts even more pressure on
>>>the whole stomach/womb area, finally after many laxatives my bowels
>>>decide to move once a fortnight.
>>>
>>>I just want to find out if anyone else had been through this and had
>>>their bladder/bowels operated on. I don't know what to do. I might be
>>>in pain now, but i don't like the idea of the bladder/bowels being
>>>tampered with as surely no matter how much they are rested after the op,
>>>they will never be a strong again.
>>>
>>>I've asked about the possibility of just removing the womb
>>>altogether...they are very reluctant to do this!! The hospital say it's
>>>too major...but tampering with my bladder/bowels is too and I need those
>>>for the rest of my life, preferable intact!! I can do without a womb, I
>>>will eventually face the fact that I won't ever have children and I'll
>>>just have to deal with it. This pain, I cannot deal with!
>>>
>>>Please anyone that has anything that might help, please let me
>>>know...it's driving me crazy as to what to do!
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