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Re: Endo in bowels/bladder??From: anonymous@obgyn.netTue Jan 27 14:00:46 2004
Hello, have you checked out Dr. Redwine's website, I'm curious what he would say about your condition. It might be worth it to you to just do a record review with him before you jump into major surgery with your GYN. Here is the link: http://www.endometriosistreatment.org/ Good luck, Mamasita At Tue, 27 Jan 2004, karen wrote: > >At Tue, 27 Jan 2004, anonymous@obgyn.net wrote: >> >>Hi Anita, >> >>I too have endometriosis on my bowels and I found laxatives to be a >>waste of time, as it sounds like you are. I did find lactolose very >>good, and after taking this for 2 months I now have normalish bowel >>function. It may be worth a try before you rush in to having major >>surgery. >> >>I also have endometriosis on my ovaries, and I am in pain almost every >>day, aswell as having long and heavy periods, so do really symapthise >>with you. >> >>Please try and consider some more options before surgery. >> >>Good luck and I hope your pain eases soon. >> >>Sharon >> >>t Mon, 26 Jan 2004, Chris wrote: >>> >>>Hi Anita, I can tell by your message that you are truely suffering. >>>Sometimes when we are suffering so badly all we want to do is hurry up >>>and have something done about it. If I was you I wouldn't settle for >>>what your doctor is suggesting without getting another opinion. That >>>surgery sounds very drastic and sounds like it could lead to more >>>problems down the road. Where are you from? I would ask some of the >>>ladies on this forum if they could give you the name of a good >>>endometriosis specialist in your area. It sounds like you really need a >>>specialist. I think you will be very happy if you did. Good luck, I >>>hope this helps. >>> >>>At Mon, 26 Jan 2004, Anita wrote: >>>> >>>>I was just wondering if anyone has had the endo spreading in their >>>>bowels and/or bladder. >>>> >>>>I have been told by my hospital that they think they have found endo in >>>>both. They are saying that they will have to open them up and remove >>>>the scar tissue and then give me a (temporary) bag on each while the >>>>holes they have made rest and heal. >>>> >>>>Now, it probably is needed as I am suffering big time with the >>>>excrutiating pain when I urinate and have constant constipation as my >>>>bowels seize up in sheer pain and refuse to move (even when I am >>>>surviving on a diet of green vegetables and fruit...mainly spinach and >>>>prunes - and still nothing happens!) >>>> >>>>Of course I then get really bloated, and this puts even more pressure on >>>>the whole stomach/womb area, finally after many laxatives my bowels >>>>decide to move once a fortnight. >>>> >>>>I just want to find out if anyone else had been through this and had >>>>their bladder/bowels operated on. I don't know what to do. I might be >>>>in pain now, but i don't like the idea of the bladder/bowels being >>>>tampered with as surely no matter how much they are rested after the op, >>>>they will never be a strong again. >>>> >>>>I've asked about the possibility of just removing the womb >>>>altogether...they are very reluctant to do this!! The hospital say it's >>>>too major...but tampering with my bladder/bowels is too and I need those >>>>for the rest of my life, preferable intact!! I can do without a womb, I >>>>will eventually face the fact that I won't ever have children and I'll >>>>just have to deal with it. This pain, I cannot deal with! >>>> >>>>Please anyone that has anything that might help, please let me >>>>know...it's driving me crazy as to what to do! > >Hi >I've had abdomindal surgery to remove endometriosis >I've suffered for as long as I can remember. A laparoscopy performed 3 >years ago, failed to diagnose it. >Diagnosis came about as the bowel began to shut down, my stools becoming >thinner and thinner, having tried just about everything else, my doctor >agreed to send me for a barium enema, which diagnosed the Endo. >The latest surgeon was wonderful, couldn't believe how this could have >been overlooked by the previous surgeon. >Endo was excised from all my abdominal organs, tubes, ovaries, uterus, >bladder and some bowel also was removed. >I've since had more major bowel surgery and a bag fitted because of >unusual complications. However my monthly cycle is pain free and >everything else has recovered well. >Prior to surgery I've tried many things to help over the years, >homeopathy, acupuncture, supplements, & herbs. Because the bowel was >shutting down I found myself in a position where surgery was my only >option. >I know that my additional surgery is very much the exception, such is >life!
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