ENDO Messages for January, 2004: Re: Endometriosis at 18?-pretty

Re: Endometriosis at 18?-pretty_492

From: anonymous (anonymous@obgyn.net)
Mon Jan 26 09:48:11 2004

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Pretty_492, Have you had a lap to diagnose endometriosis? Because that may not be what ails you. A lap is the only way to diagnose endo, you can't just have everything else "ruled out." And, actually, estrogen is what causes endo to grow, so if you are taking continuous birth control pills to stop your period from coming or taking horomones along with Lupron, you are feeding the endo with the estrogen that is in the bc and the horomones. They have not yet proven the cause of endo, so to say that it is genetic is false and to say that if it is there it has been there all along is also false. I had my surgery at 21, after suffering from symptoms since the age of 13. I was diagnosed with stage 4 endo with severe adhesions that were so deep that the doctor couldn't remove them. No one else in my immediate or distant family has endo, and until my doctor mentioned it, no one, including me, had even heard of it. I had an employee of mine recently say that she had endo. Then she requested time off to have her first lap done. Her doctor had diagnosed her without a lap, which is stupid. When she came back from her surgery, guess what!! NO ENDO!! Her doctors were so sure that she had it that they diagnosed her before doing a surgery(which is the only way to make an actual diagnosis) and they were WRONG!!! There are other conditions that cause similiar pain, and without a lap to accurately diagnose endo, that is like a doctor diagnosing cancer or hiv based on symptoms alone. In the four years since my diagnosis, I have devoted myself to studying endo and learning all there is to know about it right now so that I can make informed decisions when it comes to my health. Doctors don't know much about endo, even those who specialize in it, so it is in all of our best interest to know as much as we can.

At Mon, 26 Jan 2004, pretty_492 wrote: >
>Heather,
>I dearly hope that endo is not what ails you. When I was diagnosed with
>it I had so much pain I couldn't function while menstuating.(Different
>women have different levels, and some not at all.) Ever since I can
>remember every time I mensed I caught whatever was going around-I had
>strep in July one year. My immune was consumed with fighting the
>effects of the endo. My doctor ran a gambit of tests on me after a
>"perfectly normal" ultrasound, diabetes, anemia, cancer, he even made
>sure I wasn't having an ectopic pregnancy every month-I wasn't sexually
>active. He ruled out every other possibility, we went over my symptoms
>together and I haven't mensed since. Every time one does it gives the
>endometrioses a chance to grow and expand. My friends mother has it so
>extensively that it has fused her ovaries to her uterus and her uterus
>to her intestines, just like webbing. This is not something to mess
>around with. I will be 22 this summer, two years after being diagnosed.
>But you must understand that it is genetic, and that if it's there, it's
>been there all along.
>good luck and good health Pretty_492
>At Mon, 26 Jan 2004, Heather wrote:
>>
>>Hello all, I appreciate you for reading this. I'm 18 years old and have
>>had a chronic pain in my lower right abdomen. The pain started occuring
>>about 2 months ago, and i had been to the doctor's office several times,
>>and even got an ultra-sound. Their main concern was that it was
>>appendicitis, and thankfully it wasn't. They couldn't find anything on
>>the ultra-sound but some cysts on my ovaries that they said many people
>>have, are noncancerous, and not painful. Yet, ever since then I keep
>>having the pain in my right ovary between the time of my period,
>>everyday. This week it has been getting worse, and I've even began to
>>have vaginal discomfort from it,not to mention frequent urination. The
>>pain only escalates during my period, and then goes back to being the
>>constant pain. Some weeks are worse than others, like this week. I am
>>not sexually active. It is just a constant pain, and I'm worried it
>>could be endometriosis, so if any of you could help me out, I'd
>>appreciate it.

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