ENDO Messages for January, 2004: Re: Back Pain

Re: Back Pain

From: anonymous (anonymous@obgyn.net)
Sat Jan 17 14:59:53 2004

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Wendy,

This might not be the case for you, but I began having those same kind of "kill me now" back pains about two years ago. I had always had severe back pain from the endo, but never anything so bad that I had to do breathing exercises to cope with the pain. Anyways, I went to my gp, who told me that I had a kidney infection, though it didn't show up in a urine test. He put me on antibiotics. It didn't help, so I went back. He said the infection had come back and put me on antibiotics again. Then he said it was probably my endo and I needed to see my obgyn. When the pain came back the next time, and I knew it wasn't my endo, which has a very specific kind of pain, I went back to him. He said that it was my endo, that there was nothing he could do about it and to stop coming to him. Two weeks after my wedding in May, I was in the ER from pain so bad and so constant that I could do nothing but cry and sweat. It turns out that it was a kidney stone that had gotten stuck in my ureter. I had emergency surgery to remove it before my left kidney died from being so stopped up. It took the dye 9 hours to show up in my left kidney! To give you an idea of how long that it, the dye was in and out of my right kidney and into my bladder making me have to pee within 20 minutes!! I would ask for an IVP. Had I known that I could have saved myself a lot of pain and agony. And besides, I have had endo for a long time and I have never heard of anyone having endo in or on their back!? Endo can cause "referred" pain, where the endo in one location causes pain in a variety of other locations. Anyways, I wish you luck in solving this mystery. Don't give up and don't give in to the doctors when they tell you "it's just your endo." That is the easy way out and a response you will probably hear out of a lot of doctors for a long time to come.

>
>At Sat, 17 Jan 2004, Wendy wrote:
>>
>>I had a lap back in October that diagnosed and removed endo on my
>>uterus, overies, and cul-de-sac. They also removed some adhesions. This
>>month I started to have cramps early - I still had 2 weeks to go on my
>>Birth Control Pill, but the cramps were so bad that I decided to stop
>>taking the BCP and have my period just to get it over with. The cramps
>>were normal cramps - nothing close to the pain I felt when I would have
>>endo flare-ups. The weird thing is my lower back started aching. Then
>>the ache turned into an "Oh my god - kill me now" constant pain. I
>>didn't injure my back (I am not very active) so I figured that I must be
>>getting a bladder infection or a kidney infection or stone or something.
>>I went to my GP who told me that it was endometriosis in my back. She
>>said that a lot of times the surgery, while removes some of it - it can
>>also spread it to weird places. Well - I am going to see my ObGyn
>>Tuesday - but I wondered if anyone else had this in their back - (by the
>>way, she put me on Vioxx and it is a pretty good pain pill)
>>
>>Also - I think that I am going to give up on the pill. Obviously it
>>does NOTHING to stop or help the spread of endo. The doctors tell me
>>that it does, but my body does not like the synthetic horomones, and I
>>have no concreate evidence that it does anything, Has anyone else had
>>sucess going off the pill?
>>
>>Thanks -
>>
>>--
>>Wendy in Austin

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