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Re: LOW OGESTREL BC

From: anonymous (anonymous@obgyn.net)
Fri Jan 16 08:54:47 2004


I know exactly what you mean! I have so much pain from sitting or standing that it is all I can do to lay down without being in agony. I had to get a special parking permit so that I could finish college because I couldn't walk across campus. I take 6 200mg advil at least twice a day, usually three or four times, just to be able to tolerate the pain. But after doing that for four years, it is beginning to severely hurt my stomach when I take them. Keep us posted as to what your doctor tells you to do about the pain. The only thing I have ever heard from my doctors is "endo doesn't hurt that bad, perhaps what you need is a pshchiatrist." It is sooooo frustrating!!

At Fri, 16 Jan 2004, anonymous@obgyn.net wrote: >
>At Thu, 15 Jan 2004, anonymous wrote:
>>
>Yes, I figured I would give it until my appointment on February the 27th
>to see if the pills would regulate it. I just hope I get a little pain
>relief though because bleeding was not my only problem. I have problems
>sitting for long periods of time and I walk alot for exercise but
>because of the pelvic pain and back pain I'm limited. A person can only
>take so many Advil or Motrin.
>
>Thanks for your response,
>
>>So you mean that you took one pack, finished the active pills, took a
>>week off to have a period, started a new pack, finished the active pills
>>in that one, and took another week off to have a period, and when you
>>started the next pack seven days later instead of your period stopping
>>it continued for 19 days while you were taking the active pills? You
>>could always call your doctor and talk to the nurse over the phone. I
>>had to do that a lot when I was trying to find a pill that would work
>>for me. Remember that not all the pills are alike and there may be one
>>out there that will work better for you. My doctor always made me stay
>>on one kind for at least four months before trying a different kind
>>because it takes your body a while to adjust to the horomones in the
>>pills. But you know your body better than anyone else, if you feel that
>>there is something else causing your pain, or that these pills are not
>>for you, call your doctor and see if they can give you a different pill
>>to try. When I first started taking the pill regularly(not continuous
>>yet) it took my body a while to adjust and I had long heavy periods that
>>didn't stop even when I started the new pack. It took a while for my
>>periods, which had been about 21 days long on average, to get
>>"regulated." If you are only going off the pill for seven days every 21
>>days, then the pills should eventually begin to regulate your periods
>>down to about seven days. Back when I was still having my period, it
>>would come about two days after I took the last active pill and would
>>stay until about two days after I began the new pack. But sometimes it
>>would stay longer even long after my body had "adjusted" to the
>>pills(though, thankfully not 19 days longer, I really feel for you).
>>Remember that you know your body better than anyone, and also that you
>>have to be your own advocate. Don't wait for an appointment, call the
>>doctor. The nurse will talk to you and relay the info to the doctor. At
>>least you would have some answers, then. I really wish you well and
>>hope your body adjusts soon!!
>>
>>At Thu, 15 Jan 2004, anonymous@obgyn.net wrote:
>>>
>>>At Thu, 15 Jan 2004, anonymous wrote:
>>>No, i did not wait to start the new pack. I am taking them correctly. I
>>>actually started on time just went for 19 days non stop. But after this
>>>it has thrown my starting time into the middle of the pack and I'm back
>>>to my old heavy period.
>>>
>>>>Nan,
>>>>I am confused, why would you be starting in the middle of the pack? When
>>>>you are on bc you only go off for seven days, even if you are still
>>>>having your period. You didn't wait the whole 19 days until your period
>>>>stopped to start a new pack, did you? As for the pain, even though you
>>>>are on bc, bc does not stop the pain completely. What helps minimize
>>>>the pain is taking the pills continuously, meaning instead of taking a
>>>>week off to have a period, you start a new pack just as soon as you
>>>>finish the old pack. I was on bc for 6 years before my diagnosis of
>>>>endo, and when I had my surgery I was already stage 4. Now I am on
>>>>continuous bc, and have been for 4 years, and the pain has never gone
>>>>away. Part of the problem with bc is that endo needs estrogen to grow,
>>>>and there is estrogen in bc. The reason that your periods are still
>>>>painful is due to the endo, because endo gets a thousand times more
>>>>painful when you are bleeding, because the endo is bleeding, too and
>>>>your body is reacting as if it is a wound by covering it with scar
>>>>tissue. But that doesn't stop the endo, instead it continues to grow
>>>>buried under scar tissue which is very painful when you are bleeding. At
>>>>any rate, it is going to take a while for your body to re-adjust to the
>>>>pills. When I started taking them continuously, it took two years for
>>>>my period to actually stop. Until that I bled non-stop for two years.
>>>>Of course my doctor tried out several different pills on me before he
>>>>found the one that worked, and he had to bump me up to the high dosage
>>>>pills before we found one that worked...but what I am saying is, make
>>>>sure you are using the pills correctly, and then be patient.
>>>>Unfortunately, the hard truth about this disease is that there is not a
>>>>lot known about it, therefore the treatments are severly lacking in
>>>>their effectiveness. I wish you luck!!
>>>>
>>>> Thu, 15 Jan 2004, NAN wrote:
>>>>>
>>>>>I have been using low ogestrel BC for about 3 months for excessive
>>>>>bleeding
>>>>>and symptoms and history of endo. I barely had a period after the first
>>>>>pack
>>>>>but 2 days before Thanksgiving I started and went for 19 days. Now I am
>>>>>completely thrown off. I am starting in the middle of the pack and back
>>>>>to my
>>>>>long heavy periods. I have pain in my back by my tailbone and in my
>>>>>lower pelvic area. The BC pills have not helped this yet either. I was
>>>>>diognosed with a large uterus (14 week), fibroids with ultrasound & D &
>>>>>C. Also have hormone inbalance and polyps. My question is could my
>>>>>pain be caused more by my enlarged uterus with fibroids instead of endo?
>>>>>I figured the BC pills would have helped the pain if it was endo. I
>>>>>don't see my gyno again until February
>>>>>
>>>>>Thanks
>>>>>Nan






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