ENDO Messages for January, 2004: Re: Hi, I'm New

Re: Hi, I'm New

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From: Nic (anonymous@obgyn.net)
Tue Jan 13 23:05:36 2004

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In reply to: Rosa: "Hi, I'm New"
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Hey Rosa...my name is Nicole and I am new here too...I am 26 and have had pelvic pain since I was 17...my problems have gotten progressivley worse over the years and just this year I ended up in the hospital and was finally diagnosed with endometriosis and polycystic ovaries...I am currently on Lupron to help the endo but I am not feeling better and I am gaining weight...I feel your frustration about being otherwise healthy. This has completely taken over my life in many aspects....I have a lot of urinary pain as well and sex has been out of the question for a long time now. I am also worried about fertility as well.

When I was in the hospital the woman sharing my room had been misdiagnosed for YEARS and by the time they realized she had endo she had to come in for surgery to have her uterus and some of her intestines removed because the endo had grown around them....I am so scared that this could happen to me and I get frustrated because I don't always feel like the doctors are always listening and answering all of my questions...in fact, in the 4 months since I have started the Lupron I have only seen the nurses in my doctor's office...I have never been able to see him ONCE...

I went on the Lupron before I have had a lap because my doctor told me it could help to control the problem before the surgery....as I said, I am not feeling much better and was wondering, since you have had a lap before, how long it took you to recover....

Anyway, this was meant to be a hello and I just completely vented...but like you said, this is a wonderful resource....it is so nice to have the opportunity to hear from and talk to people who actually understand what you are going through.

At Tue, 13 Jan 2004, Rosa wrote: >
>Hi Everyone,
>
>Just wanted to say and introduce myself. I'm Rosa and am 24 years old.
>I have a lengthy history of reproductive issues starting when I was 14
>and I had a benign ovarian tumor (about 3 inches in size). I had a
>laporatomy and recovered from what I thought was a one time thing. At
>the age of 18, I had my first laporoscopy to remove about a half dozen
>cysts. My dr. tried to put me on the pill, but I seem to be allergic
>to most. About two years following that operation, I started having
>severe pain again and had another laporoscopy and D&C in Oct. 2002 for
>suspected endo - I had pain with intercourse, urination, bowel
>movements, and just constant pain on my left ovary. Turns out I had a
>cyst growing that was larger than my uterus. I am currently recovering
>from my most recent laporoscopy and D&C which I had done on Thursday. I
>had a cyst on each ovary and the beginning of endo. I just found out
>today that my pathology report revealed benign hyperplasia (apparently
>this is common in women approaching menopause!). I'm very upset about
>all of this. I'm young and I'm having all these problems...its very
>frustrating. Other than the reproductive problems, I'm in great health.
>I plan to locate a reproductive specialist in the Boston area to help
>me. I fear my fertility may be in jeopardy with all these problems
>starting and continuing at a young age.
>
>I look forward to chatting with you all. This is such a wonderful
>resource.
>
>--
>Rosa
>

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Previous message: Nic: "Re: are the majority of the women here in their twenties and thirties?"
In reply to: Rosa: "Hi, I'm New"
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