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Re: Endo - Endless Pain
From: A (anonymous@obgyn.net)
Tue Dec 30 06:50:10 2003
I have never been tested for IC but have heard a lot about it ( it's on
my to do list ). I have been to the Urologist, GYN and
Gastroenterologist and all have come up blank in terms of explaining why
I have such extreme bladder pain. However, I did have an MRI done of my
bladder which showed some ( very little ) Endo around the bladder area.
I am due for another Lap this month and I will note to the Doctor to
triple check my bladder for any adhesions. Thanks for your response;
it's much appreciated.
At Mon, 29 Dec 2003, Jennifer wrote:
>
>Have you been tested for IC, intertistal cystistis? There is a site I
>believe it is http://www.ichelp.com -- failing that a search engine should pull
>it up. It will give you a sense of what IC is like and should be enough
>to whether you fall into that group. Symptoms vary, it has flares. IE
>sometimes everything is fine and other times, nothing is. Also consider
>getting tested just for a bladder infection via a culture -- beyond a
>urine sample. Urine samples will be clean with IC but it is like having
>a chronic constant infection. The pain can be excruciating. I find a
>TENS unit moderately helpful when I am having serious bladder/peeing
>issues -- though nothing really erases it completely. And water with
>baking soda will help alkanize your urine perhaps make it less painful.
>If you are having trouble peeing make sure you aren't retaining too much
>water and get yourself to a urologist or your gyn - just to isolate the
>issue. An ultrasound will also help determine if it the problem is the
>uterus or the bladder or both -- And yes, somehow with the endo getting
>bad in my body, it has started to affect every basic function -- not
>real pleased with that. I really emphasize with you, bladder pain is
>brutal and can be constant. At Mon, 29 Dec 2003, Adrienne wrote:
>>
>>Hello all - Does anyone here suffer from extreme bladder pain associated
>>with Endo? Urinating is almost unbearable and it feels like there is a
>>bruise on my bladder that is being punched each and every time that I
>>release urine. Please help.
>
>--
>Jennifer
>
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