ENDO Messages for December, 2003: The making of the Video '' Endometriosis The Inside Story ''

The making of the Video '' Endometriosis The Inside Story ''

From: B.Browne (anonymous@obgyn.net)
Sun Dec 28 23:10:39 2003

Messages sorted by: [ date ][ thread ][ subject ][ author ]
Next message: Paula: "endo and chrons"
Previous message: holly: "Re: Where is your endo?"

Two women, one a nurse in Australia, the other a film maker in the US in Texas had identical experiences with endo. Misdiagnosis, unbelievable pain dismissed as hypochondria, imagination, or "This is normal - put up with it". They each determined to share their experiences with other endo sufferers.

They met in an internet chat room. They planned, they raised money( Belle actually took a personal loan out.. Indebt they were determined to get this finished and on film and out to the public) and from their own experiences with the disease and with the help of some caring doctors and womens' support groups they made a documentary film that shows women what they can expect when they get endometriosis and how to manage it.

How well did they succeed? Here's a review from Mary Lou Ballweg, who started the US Endometriosis Association 18 years ago when she couldn't get help with her disease.

"This video is so good that it simply must get out to the world.

>From the beginning of the Endometriosis Association, women and girls
have shared their stories of endo - powerful, painful, poignant stories.

Anyone who listens to these stories will be moved and forever change their attitudes towards this disease. Now, in a wonderful documentary, the best video ever on endo, women tell their stories for the world. If we can get partners, friends, families, and most of all, doctors and researchers, to view this documentary we can help change the world's view of endometriosis."

Mary Lou Ballweg, President Endometriosis Association

Review of the video "Endometriosis. The Inside Story" By Heather Guidone

"Endometriosis: The Inside Story," by E.B.Browne & M.M. Flores is, simply put, one of the best coping tools a woman and her family can have when dealing with Endometriosis.

"The Inside Story" shows us that we are not alone with this disease and that no one has to suffer in silence. Belle and Monica have done a wonderful job of showing the world how it is to live with Endometriosis - and how to get help managing it. Honest, educational, empowering and full of the latest information, no patient or doctor who treats this insidious disease should be without a copy of "The Inside Story" in their video library.

Shortly after returning from DC (within a week) Jen and I both sat down to watch the documentary. I, for one, was very moved. I probably went through about a dozen tissues during the course of the video. Yes, men do cry sometimes. Just don't let out my secret :) Much of what I saw was very familiar to me, especially after having just come back from the walk and hearing all the testimonials of the women I met there. There was much information that was new to me. Particularly some of the interviews of the Endo specialists contained bits of information that I had never heard before. I think the fact that Jen and I had spent a weekend with you made the video that much more powerful for me. To get a view of the daily life for women who have more debilitating disease than Jen does was just incredible. I sat in amazement, all the while thinking "Is this how Jen's going to be in a few years?" It deeply saddened and angered me that there are so many women in so much pain and relatively little is being done about it. My respect for you and other women who have this disease has also increased dramatically. The fact that you were able to come to the US to show support for the cause shows how strong of an individual you are. I would love to see a Part II to the documentary. The more information there is out there about this disease, the better. Jeffrey M. Cox Programmer/Analyst IA Systems, Inc.

A review From Carey and John Blondin ,who started Mendo and Carey's Endo Survival Kit

John and I just finished watching your video. One word comes to mind for us - FANTASTIC. You all did a fabulous job in getting the REAL story of endometriosis out there. There has never, in our opinion, been a more realistic , more factual, more true to life program about endometriosis than yours.

This video brought John and I both to tears several times. And watching you in surgery... man did that rip at my heart. I SO remember those feelings that you expressed without any words at the end of your surgery when the nurse was talking to you.

It is a huge success in our book, Belle. Bravo to the entire team involved. Now we can't wait until your second one.

Excellent job .

Carey

"Endometriosis. The Inside Story" a US / Australian co-production has been highly praised by other support groups all over the world as the most powerful and complete film ever produced on this tricky subject...One of the best tools to educate, especially your husbands and loved ones and most of all your Doctor or Obgyn. OBGYN.net has also published an interview with Belle Browne, the Australian nurse. You can read it at http://www.obgyn.net/endo/articles/endo_doc_review.htm

If you have endometriosis or have a partner, friend or relative who has it please contact your local endometriosis association or the International Endometriosis Association email support@endometriosisassn.org, web site http://www.endometriosisassn.org or The Endo Research Center http://www.endocenter.org or email Heather Guidone EndoFL3@aol.com

To obtain or purchase a Documentary please Email Belle Browne at TinkerBelles@bigpond.com or BBrowne2000@hotmail.com alternatively for the US including North and South American.. you can email directly Endo@endometriosisassn.org 5000 documentaries have been and are still being sent out to gyneacologists accross the united states and around the world, along with many thousands of letters, with all this effort being made we all hope to continue educating as many doctors and their patients and loved ones and the publuc the best ways we can.

My Best Wishes to everyone for a safe, healthy and pain free as possible New Year... with hope and faith that a cure is around the corner in 2004

Remember United We Stand and Together We Can All Make a Difference

Cheers,

Belle

-- Belle Browne, Registered Nurse Producer, Executive Producer, Co Narrator & Creator of the Documentary ''Endometriosis -The Inside Story'' Website http://www.endometriosis.org Owner - Female Chronic Pain Sufferers Forum To Subscribe email : FemaleChronicPainSufferers-subscribe@yahoogroups.com

--

Next message: Paula: "endo and chrons"
Previous message: holly: "Re: Where is your endo?"

Women's Insurance Checklist from Auto Insurance Quote

use when must restrict search to only the endometriosis forum...
Enter search keywords:
	Returns per screen: Require all keywords: