Re: ENDO an autoimmune disease?
From: anonymous (anonymous@obgyn.net)
Sat Dec 27 13:54:25 2003
hi,
Here is an interesting article about it:
http://www.holistic-online.com/Remedies/endometriosis/endo_news-endo-linked-to-autoimmune-sep-2002.htm
At Sat, 27 Dec 2003, anonymous@obgyn.net wrote:
>
>I HAVE ENDRO AND PCOS.
>NOW FOR ME I KNOW MY LOWER BACK PAIN WAS FROM PCOS. WHEN MY RIGHT OVARY
>HAD A CYST OR TWO THAT BUSTED I WAS PLACED IN THE HOSPITAL AND THEN THEY
>DID A EXPLOR. SURGERY WERE THEY FOUND ENDRO SO BAD THAT THEY COULDN'T
>REMOVE ANY OF IT. MY RIGHT OVARY WAS GLUED TO MY PELVIC WALL. THAT WAS
>THE OVARY THAT HAD THE CYSTS ON THEM. SO I WAS ON THE LUPRON SHOT FOR 6
>MONTHS.
>AFTER THE 3RD SHOT I NOTICED A DIFFERENCE, NO PAIN. THEN AFTER MY
>FOURTH SHOT
>THE PAIN CAME BACK AND NOW I HAVE TO SEE A SPECIALIST.
>
>THIS ALL HAPPENED 6 MONTHS BEFORE MY WEDDING!!!! IT WAS A CRAZY YEAR FOR
>ME
>NOW WE ARE HOPING WE CAN HAVE KIDS
>
>At Wed, 29 Oct 2003, Dianne wrote:
>>
>>No I did not test for Epstein Barr, I was told that my feeling run down
>>was from the severe allergies I have suffered with from a child (and my
>>mom blames it on my riding for all those year tearing up my body). Since
>>I had my first ovarian cyst rupture in '89, and then had severe symptoms
>>of edo in '91-92 it has been years since I have felt good. I am having
>>a hysterctomy on 11/14 and it is going to be interesting to see how my
>>health is after this procedure. I do wish that there was more known
>>about this disease, and also that it was not so difficult to find a
>>physician that did not believe that your pain is all in your head.
>>Thankfully I have found a wonderful gyn, and am on the road to a better
>>and healthier life!
>>
>>At Wed, 29 Oct 2003, Jennifer wrote:
>>>
>>>I had many of the same symptoms. I think it happens as endo progresses
>>>your immune system falls apart. Did you test for Epstein Barr?
>>>Apparently that is what is partially responsible for the fatigue stuff
>>>and it is related to mono & chronic fatigue. Accupuncture helped some
>>>with those symptoms.
>>>JenniferAt Wed, 29 Oct 2003, Dianne wrote:
>>>>
>>>>Jen, for about a year I felt run down, low grade fevers, no energy, and
>>>>felt just crappy. It turns out that edno can mimic an autoimmune
>>>>disorder. One of main reasons I now believe this theory is that I was
>>>>having horrible pain in my hips and lower back, when I began my Lupron
>>>>shots (after about 3) this pain went away, so the pain from endo had
>>>>been though to be a bad back and arthritis in my hips from years of
>>>>riding hunters and jumpers. While I have not found any direct clinical
>>>>evidence (studies) I bounced this idea off my gp and she finds it
>>>>plausable since endo is an inflammitory condition, but she has also not
>>>>heard of any direct studies to confirm this.
>>>>
>>>>At Wed, 29 Oct 2003, Jen wrote:
>>>>>
>>>>>My internal doctor has been testing me for Lupus, Rhumetoid Arthritis,
>>>>>Fibromyalsia among othe things like Mono, etc. He is convinced that I
>>>>>have an autoimmune disorder, I am convinced and my GYNO suspects that I
>>>>>have END. Can endo give off hints of an autoimmune disorder?
>>>>>Any opinions or experiences are appreciated.
>>>
>>>--
>>>Jennifer
>>>
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)