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Re: Back pain that won't go away
From: anonymous@obgyn.net
Sat Dec 27 11:15:47 2003
DEMAND A EXPLORATORY SURGERY, THAT WAY THEY CAN CHECK YOUR OVARIES
TO MAKE SURE IT ISN'T PCOS. I WAS DIGNOSED WITH THAT WHEN I WENT IN TO
SEE IF I HAD ENDRO, COME TO FIND OUT I HAD IT SO BAD THEY COULDN'T
REMOVE IT, AND THEN THEY DISCOVERED I HAD PCOS. I TOO THOUGHT THE LOWER
BACK PAIN WAS FROM ENDRO, BUT IT WAS AND STILL IS FROM PCOS. SINCE THEN
I FINISHED MY LAST SHOT OF LUPRON , HOPING TO GET PREGNANT, IF NOT I
HAVE TO SEE A SPECIALIST FOR
THE PAINS I AM STILL HAVING.
At Fri, 26 Dec 2003, Amanda wrote:
>
>Hi Donna:
>I have had low back pain (sacrococcygeal) daily for 1.5 years. My drs
>also have failed to find a problem with my back itself. On the flipside
>there is no conclusive evidence that it is endo either. My doctors seem
>to pass me off on each other to avoid dealing with it. I was told that
>the only way to "rule out" endo as the cause would be to take Lurpon and
>see if the back pain persists through treatment. I am terrified, but
>the back pain is disabling (as you know) and like you, I don't even know
>where else to turn. It is hard for other people to understand, even the
>people in my Endo Support Group- but I honestly feel if the worst a
>hysterectomy could do was not help, I'd do it in a second.
>By the way- I had acupuncture- 18 treatments- Japenese, chinese, laser.
>It didn't help me.
>
>At Fri, 19 Dec 2003, anonymous@obgyn.net wrote:
>>
>>ok, my opinion is that is horse shit. First all the research that i
>>have done says that a hysterectomy is NOT a cure for Endo. Actually the
>>endo could persist even after the hysterectomy. Second you need to get
>>a second opinion. You have that right. under no circumstances should
>>you ever (except when in the ER) accept the first opinion you get.
>>
>>As for the pain in the back. Have you tried accupuncture? I know that
>>may sound New Age and such but I have heard it can really make a
>>difference in managing the pain.
>>
>>I really hope that the pain eases for you. My mother runs a residency
>>program at a major hospital and she is always telling me that a patient
>>HAS to be her own advacate. The doctors do what they do because it is
>>what they ALWAYS do. Usually it is standard operating proceedure. They
>>don't think out of the box. that is our job.
>>
>>Good Luck
>>
>>Dani
>>
>>At Fri, 19 Dec 2003, Donna wrote:
>>>
>>>About 2 1/2 weeks ago I underwent laparascopic surgery for excision of
>>>adhesions due to endo. I also had a pre-sacral neurectomy done. I know
>>>it takes some time to heal after surgery, but I am still having lower
>>>back pain.
>>>I have been having lower back pain for about 2 years. I saw a
>>>chiropractor, an orthopedic back specialist, a physical therapist, and I
>>>have done yoga, stretches for your back, and other types of exercise to
>>>strengthen my back. Nothing is structurally wrong with my back and none
>>>of these things have made my pain go away. In fact, no pain reliever
>>>I've tried relieves the pain. So I was convinced the pain was from my
>>>endo. I don't know what else to do. The doctor said the only way to
>>>find out if the pain is because of the endo, is to have a hysterectomy.
>>>I don't really want to have one, but I don't know what else to do. Does
>>>anyone have any info or suggestions for me? I'd greatly appreciate any
>>>thoughts on the matter.
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