Re: ENDO an autoimmune disease?
From: anonymous@obgyn.net
Sat Dec 27 11:04:47 2003
I HAVE ENDRO AND PCOS.
NOW FOR ME I KNOW MY LOWER BACK PAIN WAS FROM PCOS. WHEN MY RIGHT OVARY
HAD A CYST OR TWO THAT BUSTED I WAS PLACED IN THE HOSPITAL AND THEN THEY
DID A EXPLOR. SURGERY WERE THEY FOUND ENDRO SO BAD THAT THEY COULDN'T
REMOVE ANY OF IT. MY RIGHT OVARY WAS GLUED TO MY PELVIC WALL. THAT WAS
THE OVARY THAT HAD THE CYSTS ON THEM. SO I WAS ON THE LUPRON SHOT FOR 6
MONTHS.
AFTER THE 3RD SHOT I NOTICED A DIFFERENCE, NO PAIN. THEN AFTER MY
FOURTH SHOT
THE PAIN CAME BACK AND NOW I HAVE TO SEE A SPECIALIST.
THIS ALL HAPPENED 6 MONTHS BEFORE MY WEDDING!!!! IT WAS A CRAZY YEAR FOR
ME
NOW WE ARE HOPING WE CAN HAVE KIDS
At Wed, 29 Oct 2003, Dianne wrote:
>
>No I did not test for Epstein Barr, I was told that my feeling run down
>was from the severe allergies I have suffered with from a child (and my
>mom blames it on my riding for all those year tearing up my body). Since
>I had my first ovarian cyst rupture in '89, and then had severe symptoms
>of edo in '91-92 it has been years since I have felt good. I am having
>a hysterctomy on 11/14 and it is going to be interesting to see how my
>health is after this procedure. I do wish that there was more known
>about this disease, and also that it was not so difficult to find a
>physician that did not believe that your pain is all in your head.
>Thankfully I have found a wonderful gyn, and am on the road to a better
>and healthier life!
>
>At Wed, 29 Oct 2003, Jennifer wrote:
>>
>>I had many of the same symptoms. I think it happens as endo progresses
>>your immune system falls apart. Did you test for Epstein Barr?
>>Apparently that is what is partially responsible for the fatigue stuff
>>and it is related to mono & chronic fatigue. Accupuncture helped some
>>with those symptoms.
>>JenniferAt Wed, 29 Oct 2003, Dianne wrote:
>>>
>>>Jen, for about a year I felt run down, low grade fevers, no energy, and
>>>felt just crappy. It turns out that edno can mimic an autoimmune
>>>disorder. One of main reasons I now believe this theory is that I was
>>>having horrible pain in my hips and lower back, when I began my Lupron
>>>shots (after about 3) this pain went away, so the pain from endo had
>>>been though to be a bad back and arthritis in my hips from years of
>>>riding hunters and jumpers. While I have not found any direct clinical
>>>evidence (studies) I bounced this idea off my gp and she finds it
>>>plausable since endo is an inflammitory condition, but she has also not
>>>heard of any direct studies to confirm this.
>>>
>>>At Wed, 29 Oct 2003, Jen wrote:
>>>>
>>>>My internal doctor has been testing me for Lupus, Rhumetoid Arthritis,
>>>>Fibromyalsia among othe things like Mono, etc. He is convinced that I
>>>>have an autoimmune disorder, I am convinced and my GYNO suspects that I
>>>>have END. Can endo give off hints of an autoimmune disorder?
>>>>Any opinions or experiences are appreciated.
>>
>>--
>>Jennifer
>>
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