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Re: Back pain that won't go away
From: Amanda (anonymous@obgyn.net)
Fri Dec 26 20:11:50 2003
Hi Donna:
I have had low back pain (sacrococcygeal) daily for 1.5 years. My drs
also have failed to find a problem with my back itself. On the flipside
there is no conclusive evidence that it is endo either. My doctors seem
to pass me off on each other to avoid dealing with it. I was told that
the only way to "rule out" endo as the cause would be to take Lurpon and
see if the back pain persists through treatment. I am terrified, but
the back pain is disabling (as you know) and like you, I don't even know
where else to turn. It is hard for other people to understand, even the
people in my Endo Support Group- but I honestly feel if the worst a
hysterectomy could do was not help, I'd do it in a second.
By the way- I had acupuncture- 18 treatments- Japenese, chinese, laser.
It didn't help me.
At Fri, 19 Dec 2003, anonymous@obgyn.net wrote:
>
>ok, my opinion is that is horse shit. First all the research that i
>have done says that a hysterectomy is NOT a cure for Endo. Actually the
>endo could persist even after the hysterectomy. Second you need to get
>a second opinion. You have that right. under no circumstances should
>you ever (except when in the ER) accept the first opinion you get.
>
>As for the pain in the back. Have you tried accupuncture? I know that
>may sound New Age and such but I have heard it can really make a
>difference in managing the pain.
>
>I really hope that the pain eases for you. My mother runs a residency
>program at a major hospital and she is always telling me that a patient
>HAS to be her own advacate. The doctors do what they do because it is
>what they ALWAYS do. Usually it is standard operating proceedure. They
>don't think out of the box. that is our job.
>
>Good Luck
>
>Dani
>
>At Fri, 19 Dec 2003, Donna wrote:
>>
>>About 2 1/2 weeks ago I underwent laparascopic surgery for excision of
>>adhesions due to endo. I also had a pre-sacral neurectomy done. I know
>>it takes some time to heal after surgery, but I am still having lower
>>back pain.
>>I have been having lower back pain for about 2 years. I saw a
>>chiropractor, an orthopedic back specialist, a physical therapist, and I
>>have done yoga, stretches for your back, and other types of exercise to
>>strengthen my back. Nothing is structurally wrong with my back and none
>>of these things have made my pain go away. In fact, no pain reliever
>>I've tried relieves the pain. So I was convinced the pain was from my
>>endo. I don't know what else to do. The doctor said the only way to
>>find out if the pain is because of the endo, is to have a hysterectomy.
>>I don't really want to have one, but I don't know what else to do. Does
>>anyone have any info or suggestions for me? I'd greatly appreciate any
>>thoughts on the matter.
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