Re: Fibromyalgia side effect from Lupron
From: Melissa (anonymous@obgyn.net)
Wed Nov 26 09:57:28 2003
Guess I forgot to mention I started taking a low dose of Nortriptyline
in early October...might be the reason my fibromyalgia pain went away...
At Wed, 26 Nov 2003, Melissa wrote:
>
>Hi there everyone. I'm not a active member of this forum, mainly due to
>my health issues, but I'm FINALLY coming out of a horrible 6 months
>experience on Lupron and I want to warn everyone that reads this about
>it.
>
>This is a BIG warning to all of you taking this drug or considering it.
>If I had stopped with just the first 6 months on this stuff, I'd have
>been fine. But my body seems to have reacted at the large amount of it,
>due to the accumlative affect and the additional 3 month shot. I even
>developed a positive ANA (anti-nuclear antibody found in auto-immune
>disorders like Lupus). Please, discuss using only the 1 month shot if
>you have to take this drug, and only use it for the FDA recommended 6
>months. Because of the cumulative effect, my 9 months of Lupron is
>really 1 year, as it stays in your body A LONG TIME.
>
>I did the recommended 6 months on Lupron with only minor side effects,
>then, at the persistance of my OB/GYN, on June 16th of this year, I took
>an additional 3 month shot. Within 24 hours my knees began to ache.
>Three weeks later and the knee pain had increased to the point of being
>unable to walk on them AND it had spread to ALL of my joints, jaw to
>toes. I spent 7 weeks on steroids, which helped some, but it is only
>now, almost 6 months after that fateful shot, that I am beginning to
>find relief from the pain that crippled me for almost half a year. I'm
>serious. I had to quit my job, take the semester off from college,
>couldn't drive my car (unless on the steroids) or do detailed work with
>my hands. I lost weight, mostly muscle, and am now a very unhealthy 110
>pounds without any stamina or ability to even hold heavy things.
>
>I saw many doctors and, though Fibromyalgia-like symptoms are listed in
>the PDR of Lupron as postmarketing side effects, and though Fibromyalgia
>and possible arthritis were diagnosed, no doctor would admit I had
>developed any of this from Lupron. I am only 27 and aside from the
>Endometriosis, had been extremely healthy and strong prior to my Lupron
>injections.
>
>Lupron made me suddenly intolerant to wheat, dairy and corn. After
>cutting all of these foods out of my diet, I've managed to almost
>eliminate the joint pain (except minor pain in fingers and knees), and
>the fibromyalgia muscle pain has gone away in the last 3 weeks, most
>likely corresponding with the Lupron leaving my body.
>
>I had a laparoscopy two weeks ago. My endo had shrunk in the last 11
>months, but was most definitely still there. I also had a large cyst on
>my right ovary and adhesions. The Lupron gave me a respite from my
>pelvic pain, but did not cure my endometriosis (not that I thought it
>would). Sad to see that I also went on Lupron because of a painful
>ovarian cyst (couldn't wear most pants or a seat belt). It went
>"inactive" on the Lupron but would have started hurting again when my
>hormones and ovaries came back into action.
>
>Long warning, I know, but if I can save ONE WOMAN (or man) from having
>to endure this, I have to try. I'm not a religious person, but I am
>thanking god that I came out of this. At times, I thought I never
>would. Take care everyone.
>
>--
>Melissa
>
>--
>"Snow comes last
>for it quiets down everything."
> - Snow the Last by Joseph Concha
>
--
"Snow comes last
for it quiets down everything."
- Snow the Last by Joseph Concha
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