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Fibromyalgia side effect from LupronFrom: Melissa (anonymous@obgyn.net)Wed Nov 26 09:45:57 2003
Hi there everyone. I'm not a active member of this forum, mainly due to my health issues, but I'm FINALLY coming out of a horrible 6 months experience on Lupron and I want to warn everyone that reads this about it. This is a BIG warning to all of you taking this drug or considering it. If I had stopped with just the first 6 months on this stuff, I'd have been fine. But my body seems to have reacted at the large amount of it, due to the accumlative affect and the additional 3 month shot. I even developed a positive ANA (anti-nuclear antibody found in auto-immune disorders like Lupus). Please, discuss using only the 1 month shot if you have to take this drug, and only use it for the FDA recommended 6 months. Because of the cumulative effect, my 9 months of Lupron is really 1 year, as it stays in your body A LONG TIME. I did the recommended 6 months on Lupron with only minor side effects, then, at the persistance of my OB/GYN, on June 16th of this year, I took an additional 3 month shot. Within 24 hours my knees began to ache. Three weeks later and the knee pain had increased to the point of being unable to walk on them AND it had spread to ALL of my joints, jaw to toes. I spent 7 weeks on steroids, which helped some, but it is only now, almost 6 months after that fateful shot, that I am beginning to find relief from the pain that crippled me for almost half a year. I'm serious. I had to quit my job, take the semester off from college, couldn't drive my car (unless on the steroids) or do detailed work with my hands. I lost weight, mostly muscle, and am now a very unhealthy 110 pounds without any stamina or ability to even hold heavy things. I saw many doctors and, though Fibromyalgia-like symptoms are listed in the PDR of Lupron as postmarketing side effects, and though Fibromyalgia and possible arthritis were diagnosed, no doctor would admit I had developed any of this from Lupron. I am only 27 and aside from the Endometriosis, had been extremely healthy and strong prior to my Lupron injections. Lupron made me suddenly intolerant to wheat, dairy and corn. After cutting all of these foods out of my diet, I've managed to almost eliminate the joint pain (except minor pain in fingers and knees), and the fibromyalgia muscle pain has gone away in the last 3 weeks, most likely corresponding with the Lupron leaving my body. I had a laparoscopy two weeks ago. My endo had shrunk in the last 11 months, but was most definitely still there. I also had a large cyst on my right ovary and adhesions. The Lupron gave me a respite from my pelvic pain, but did not cure my endometriosis (not that I thought it would). Sad to see that I also went on Lupron because of a painful ovarian cyst (couldn't wear most pants or a seat belt). It went "inactive" on the Lupron but would have started hurting again when my hormones and ovaries came back into action. Long warning, I know, but if I can save ONE WOMAN (or man) from having to endure this, I have to try. I'm not a religious person, but I am thanking god that I came out of this. At times, I thought I never would. Take care everyone.
-- Melissa
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