ENDO Messages for November, 2003: Re: greetings

Re: greetings

From: Alice (anonymous@obgyn.net)
Mon Nov 17 07:30:14 2003

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At Wed, 24 Feb 1999, Christine wrote: >
>At Wed, 24 Feb 1999, TINA wrote:
>>

Hello Tina -

This is my first time ever in a chat room. But after reading your story, I felt that I shoud say mine to maybe shed some light for you. I have been suffering from chronic pelvic pain, irritable bowl movements, painfull urination, painfull intercourse and pain down my leg. I have been on pain medicine so long, I've become addicted to it. (Another problem to deal with)

For many years no one knew what was wrong with me. One doctor said it was all in my head. That I just suffered from severe cramps and had to deal with it. When I started missing a lot of work and losing many jobs, I decided to go online and see if anybody else was going through the same thing. I then told my doctor to check for endo. He did a laporoscopy and BINGO! He lasered out as much as he could, took lots of pictures and found that I had chocalate cysts, fybroids and endo.

I was good for a little while until the pain was back. So he gave me a Luprin Shot. Again, I was good for a little while but the endo was back. In the mean time I had lots of problems with my write ovary (cysts rupturing etc.)so we decided to remove my write ovary and uterus. I asked him to remove the other ovary as well but he said if there was nothing wrong with it, it stays. Well I had the surgery and had to follow up six months later. Four months into my recovery, I began feeling the endo pain again. He said it's probably scar tissue. I didn't think so. He did a sonogram and found a cyst in my left ovary 7x7. When he said that to me it was almost as if he told me I had cancer. He said that he would follow the cyst every couple of weeks to chech the size. My cyst began to change, forming septums. This made him think it my be cancer, and if it was, and if it were to ruptured, the cancer would spread. I knew what was coming. It wasn't over. I knew the endo was back. We scheduled another surgery to remove my left ovary. So you see, I have nothing left but hope. He said that the cyst had rapped itself around my colon and on the write side I had endo. He removed as much as he could and told me he would give me another Luprin shot and I should be fine. I'll let you know how I feel after having that shot. But for now I am still on pain medicine and Premarin.

My heart goes out to you and every woman out there suffering with endo. My advise is get as much knowledge as you can. If it hadn't been for these chat room stories, I would probably still be clueless about my endo.

P.S.

My gut tells me that even with my hysterectomy, it's not over.

Good Luck

--
Alice
>>Good morning- or afternoon depending on where you are located.  this is my
>>first time logging on to a chat and I just wanted to say WOW!!!  It is such
>>a relief to see others are haveing similar problems with endo and the
>>stratagies they are using to cope with it.  I was amazed when I turned on
>>my computer to see all the messages I got from the chat now in progress.
>>My name is tina and I was recently diagnosed with endo although after my
>>surgery I was told I had probably had since I was twelve. (  I am now 25).
>>LIke many of you I statred off with terrible periods at the age of 11.  I
>>gratefully have two children and after their births although I had classic
>>symptoms ( I bleed for over a year after each of them were born.  As though
>>I had just given birth.)  I was told it was probbably PID the test was neg.
>> Finally a year after my son was born I had an endometrial oblation.  The
>>bleeding stopped.  seven months later I began to have prblems with painful
>>urination and bowel movement.  They remain a mystery.  This past september
>>is when my first endo attack hit and I thought my appendix ruptured.  again
>>I was told they had no idea what was causing the pain.  The pain was so
>>debilitating that I had to drop all my courses and i could hardly care for
>>my children.  Finally after losing 25 punds and continual vomiting my gyn
>>finally decided to see me.  ( I had been to the ER probably 12 time prior
>>to this)  On the 29th of Dec.  I went in and He said well I really don't
>>believe that it's endo but, if it is bothering you enough well I guess we
>>can schedule a laparoscopy.
>>Two weeks later it was preformed and he found several endo cysts the size
>>of golf balls and my entior abdominal cavity was covered, my bowels and
>>urithra.  That was on Jan 11.  I have started Lupron and Initally things
>>got worse before they got better but finally I am having some relief.
>>I have seen several women mention that they don't beleive a hysteractomy
>>works.  Now or you talking about surgical menapause or just removing the
>>uterus.  And if you have any information on  why you believe surgical
>>menapause doesn't work please forward it on to me.  Because I have spent
>>the last month doing nothing but research and that seems to be the only
>>sign of hope.
>>Thanks and I look forward to talking to you.
>>Tina In Minnesota
>
>Hi Tina:
>Theoretically, removal of the ovaries (surgical menopause) *should*
>result in an improvement of endo.  However, I believe it is the case
>that they don't know for sure what fuels endo and some have even
>theorized that the endo makes its own estrogen! Also, how do you explain
>why some women have a terrible time from natural menopause with
>debilitating symptoms and others sail through it with hardly anything.
>It could be they have a smoother shutdown, or perhaps they have a better
>source of non ovarian estrogen? This is not original thinking on my
>part, I have read all of this in various research reports.
>That does not mean that if you have a surgical menopause you will NOT
>have relief-you could have great relief! You could even have great
>relief when just hte uterus is removed.  It's just not a given.  HOWEVER,
>if you are a young woman, not having estrogen can have some nasty side
>effects, as well as serious ones.  Some women can not function
>cognitively without estrogen.  (remember the old wives tales about the
>poor women who went crazy at The Change.  Those old wives tales were
>usually based on some fact) Then there's the problem of many years of no
>estrogen and that effect on your bones and cardiovascular system.  I
>believe it is fairly well documented that estrogen has a beneficial
>effect on the cardiovascular system and this is why women's risk for
>heart disease is at least 10 years behind men, the other factors being
>equal.  I read that most women fear breast cancer, but it is really
>heart disease they should fear as it is the #1 killer of women.
>
>Chris S.

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