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Re: ENDO an autoimmune disease?From: Jennifer (anonymous@obgyn.net)Fri Oct 31 13:18:11 2003
Hi replying mostly b/c somehow I also have the epstein barr, with the endo & adhesions -- and the draining fatigue at moments. And my recovery is so slow -- we are hoping for 8 weeks at this point. My immune system seems really absent and managed to relapse in week 2 with bronchitis & asthma. Also somehow had several post-op issues -- my whole system just seems really weak. Something my doctor has encouraged and I did before the surgery b/c I was so sick, is macrobiotics. Takes some discipline but does seem to deliver some results. Have you found anything else that helps? I am doing all the supplements, etc. Any other ideas? Are you also suffering a serious loss of appetite? I just want more energy and me back. And I have to beleive that the endo wore my system down to the epstein barr stuff -- I used to be very healthy, capable, energetic, athletic. Yes, I paid some attention to what I ate but now it is something I am so aware of. Any thoughts on how to get back to that more quickly? Reassurance that I will. Thanks, Jennifer At Fri, 31 Oct 2003, Lorien Osborn wrote: > >hI, I also have stage 4(maybe 5)endo. When my endo gets really bad I >develope an extreme allergy to eggs. So that time I go into my awseom >Doctor and tell what ever we've been doing has stopped working and it's >time to try something new. I treat it like a warning signal. it comes >in handy. > >At Wed, 29 Oct 2003, Chris wrote: >> >>Hi, I have stage 4 endo. I have also been diagnosed with Epstein Barr >>virus and I think I have at times had all the symptoms of Fibromyalgia. >>It seems that when my endo is at its worst I think it triggers chronic >>fatigue type symptoms which I think is related to Epstein Barr and mono >>and fibromyalgia etc. Every time I get the endo cleaned up all the >>other symptoms seem to disappear too. Then when the endo returns, so do >>the other symptoms. Somehow, for me, it seems to be related. Also, I >>have read that endometriosis is/or is suspected of being an autoimmune >>disease itself. Supposedly, people with endometriosis are at higher >>risk of getting other autoimmune diseases than people who don't have >>endo (this also includes allergies). I know a lot of this is me >>guessing and putting together bits and pieces of things I've read >>together, but I hope it helps. I suffered for a long time with the >>chronic fatigue symptoms before I found out that I had endo. Hopefully, >>soon they will be able to diagnose endo easier. >> >>At Wed, 29 Oct 2003, Jen wrote: >>> >>>My internal doctor has been testing me for Lupus, Rhumetoid Arthritis, >>>Fibromyalsia among othe things like Mono, etc. He is convinced that I >>>have an autoimmune disorder, I am convinced and my GYNO suspects that I >>>have END. Can endo give off hints of an autoimmune disorder? >>>Any opinions or experiences are appreciated.
-- Jennifer
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