ENDO Messages for October, 2003: Re: sick of the pain

Re: sick of the pain

From: jo (anonymous@obgyn.net)
Wed Oct 29 20:43:16 2003

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In reply to: Melissa: "Re: sick of the pain"

At Tue, 28 Oct 2003, Melissa wrote: >
>Hi Jo,
>
>You mention that you have had 5 surgeries, but you haven't mentioned
>whether you have tried any of the pharmaceuticals out there to try to
>help control the progression/recurrence of endo? A pain specialist can
>be a great resource for those living with chronic pain, I would advise
>you to make sure that the specialist has several different ways of
>treating pain, and has knowledge of endo. Sometimes it is finding the
>right combination more than anything that helps to get through.
>Personally, I have stage 4 endo, and somedays are harder than others for
>sure. I have been through most of the usual medical treatments (not
>including Lupron - I refused that), but have found that diet, herbs,
>supplements have helped the most to control the symptoms.
>
>When it comes down to making the choice between hyst/having children,
>etc., only you can make that decision. But make sure that you are well
>aware of the consequences of both. I have been told that since I have
>endo inside my bowel lining, among other places, that a hyst will not
>bring all that much relief. I had the choice though about a year ago to
>have a hyst, and at that time I said "no" (I'm 25 now), and am now
>pregnant when 4 specialists told me that it would never happen. Now,
>not everyone will respond to pregnancy very well either, and the endo
>symptoms may be just as bad. This is what has happened with me. Even
>though I'm pregnant I'm still in almost constant pain from the various
>growths that I have, and have continued to experience other symptoms.
>
>In any case, if you would like to talk more, please feel free to e-mail
>me anytime, melissaralston@sympatico.ca
>
>Take care,
>Melissa

Hi Melissa

Thanks for that. I have just picked up some pills from my natropath (excuse the spelling). One of them is a bottle of pain herbs, with ginger, corydalis, and bupleurium. The other are Withania compound they are to help the nerves. On top of that i take vitamin c, calcium, flax oil tablets and a bach remedy to help with the emotions that are always running up and down. I have tried Dimetrose for 6mths, the Mirena IUD (it only lasted 18mths), Have tried Depoprovera, Provera, Femodene 28, and Loette. Am currantly on 20mg of Provera, and having no periods. I don't know where you are from but i am in New Zealand and maybe we don't have the same drugs as you do. I starting Accupuncture on Monday, and am waiting on a call from the pain team in regards to my appointment. But meanwhile trying not to stress, and keep up the whole lifestyle thing, you know. Good diet, gentle exercise, supposdly no stress and of course work 45 hrs a week without over doing things. am off to have a bath to see if it helps the currant pain. take care JO

Next message: Michelle: "Re: Nobody seems to know what it is"
Previous message: ls: "Re: ENDO an autoimmune disease?"
In reply to: Melissa: "Re: sick of the pain"

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