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Re: ENDO an autoimmune disease?
From: Dianne (anonymous@obgyn.net)
Wed Oct 29 18:47:15 2003
No I did not test for Epstein Barr, I was told that my feeling run down
was from the severe allergies I have suffered with from a child (and my
mom blames it on my riding for all those year tearing up my body). Since
I had my first ovarian cyst rupture in '89, and then had severe symptoms
of edo in '91-92 it has been years since I have felt good. I am having
a hysterctomy on 11/14 and it is going to be interesting to see how my
health is after this procedure. I do wish that there was more known
about this disease, and also that it was not so difficult to find a
physician that did not believe that your pain is all in your head.
Thankfully I have found a wonderful gyn, and am on the road to a better
and healthier life!
At Wed, 29 Oct 2003, Jennifer wrote:
>
>I had many of the same symptoms. I think it happens as endo progresses
>your immune system falls apart. Did you test for Epstein Barr?
>Apparently that is what is partially responsible for the fatigue stuff
>and it is related to mono & chronic fatigue. Accupuncture helped some
>with those symptoms.
>JenniferAt Wed, 29 Oct 2003, Dianne wrote:
>>
>>Jen, for about a year I felt run down, low grade fevers, no energy, and
>>felt just crappy. It turns out that edno can mimic an autoimmune
>>disorder. One of main reasons I now believe this theory is that I was
>>having horrible pain in my hips and lower back, when I began my Lupron
>>shots (after about 3) this pain went away, so the pain from endo had
>>been though to be a bad back and arthritis in my hips from years of
>>riding hunters and jumpers. While I have not found any direct clinical
>>evidence (studies) I bounced this idea off my gp and she finds it
>>plausable since endo is an inflammitory condition, but she has also not
>>heard of any direct studies to confirm this.
>>
>>At Wed, 29 Oct 2003, Jen wrote:
>>>
>>>My internal doctor has been testing me for Lupus, Rhumetoid Arthritis,
>>>Fibromyalsia among othe things like Mono, etc. He is convinced that I
>>>have an autoimmune disorder, I am convinced and my GYNO suspects that I
>>>have END. Can endo give off hints of an autoimmune disorder?
>>>Any opinions or experiences are appreciated.
>
>--
>Jennifer
>
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