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Re: Curious
From: anonymous (anonymous@obgyn.net)
Tue Oct 21 20:19:44 2003
jenn,
You are not alone, I have the sharp shooting pains as well. However, my
pain goes all the way to my ankles sometimes and always to my knees, it
doesn't stop in my pelvis. If I were you, I would have a lap done to
confirm the diagnosis and have the doctor remove as much of the endo as
possible. Then I would try birth control pills continuously. I would
stay away from Lupron as long as possible and only use it as a last
resort, only because the side effects are so aweful, like the extensive
bone loss. Good luck to you in your fight!
Jules
At Tue, 21 Oct 2003, Jenn wrote:
>
>I have recently had a preliminary diagnosis for endometriosis after
>suffering from pains for about 10 years now. I am 24 and have a history
>of female reproductive problems in my family, one of which was my mom's
>extensively bad endometriosis. Because of this and my list of symptoms
>my doctor has good reason to believe I may be suffering from the same.
>This is all very relieving to me, as I have tried for years to get
>doctors to listen to me, to no avail.....sad that I've had to wait this
>long.
>Anyway, I'm scared too and have recently been told to start considering
>my options.....laparoscopy or Lupron Depot.....does anyone have any
>experience with this new drug treatment? Can you fill me in on the side
>effects and if it has helped.
>Also,unlike other people's symptoms I have read, mine are different. I
>have sharp, knife like pains that come and go....longest one lasting for
>only an hour and it basically locked up the lower half of my body making
>it excrutiating to move at all, heavy periods with extensive cramping
>that is unbearable, nausia, sustained dull aching that sometimes shoots
>down my leg and culminates in either the lower left or right side of my
>pelvis, and sometimes can spot for 3 to 5 days before the actual onset
>of my period....and I've recently been diagnosed with cysts....don't
>know yet if it's related to the endometriosis.
>In short, I just need to know I'm not alone. I've yet to read about
>women having these sharp shooting pains that come and go, and have no
>rhyme or reason. If you're out there and you've experienced the same I
>would love to hear from you.
>My best to all the women out there trying to make sense of this disease.
>-Jenn
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