|
Re: aggressive angiomyxoma
From: debbie (anonymous@obgyn.net)
Sun Oct 19 22:44:47 2003
I want to reply to all who have the angiomyxoma tumor. I have had this
tumor 4 times. It has occurred each time I got pregnant. Finally in
1998 I found a great doctor in Las Vegas who saved my life. My tumor
was 10#'s and she removed it and it has not come back since. After the
removal of the tumor I was in bad medical shape, I got poisoning from my
urine and bowel along with having to have an emergency hystorectomy, a
colostomy as well as a tube in my kidney. Anyway, despite the pain I
was in from the 8 hour surgery along with the other emergency surgeries,
I survived and have been tumor free for 5 years. I am on Estrace, 2mg
and that is it. I had Lupron therapy for 6 months following the
surgery. Good luck to all!!!
At Fri, 18 Apr 2003, melinda wrote:
>
>At Fri, 15 Mar 2002, Danielle wrote:
>>
>>At Sat, 28 Jul 2001, Paula wrote:
>>>
>>>I was diagnosed 3 weeks ago as having this cancer. The tumor was found
>>>during my hysterectomy on June 11, 2001.
>>>I'd love to hear from others with this cancer, I fear the mutilation of
>>>the "radical hysterectomy" scheduled in 2 weeks to make sure the tumor
>>>has been completely excised. I'm starting to wonder if I should opt to
>>>not have surgery.
>>>No other treatment was suggested.
>>>
>>>At Sat, 21 Apr 2001, anonymous@obgyn.net wrote:
>>>>
>>>>to carolyn who has this rare tumour...my sister also suffers from this
>>>>please reply as to how you are now are you in pain as my sister is daily
>>>>what treatment are you taking...would love to hear from you or anyone
>>>>else suffering from same...many thanks Geraldine
>>
>>Hello to all who suffer from aggressive angioxyoma, my mother has also
>>been diagnosed with this growth tumor. She has already had a total
>>hysterectomy in February 2000. There is a new growth now, March 2002,
>>and we are looking for other options to surgery, and also to speak with
>>others with this growth. Any help would be greatly appreciated.
>
>I've been diagnosed with angiomyxoma in 1994. I had surgery to remove
>what they could but it came back again. It was not malignant. I have
>been taking megace for the tumor for the last 8years & it is keeping it
>under control. My doctor feels surgery is really not a good option
>because it is so aggressive
>& will only come back again. The only thing with the megace is that you
>gain alot of weight because its a hormone & also an appetite stimulant &
>it's hard to diet when you're on it.
>>
>>--
>>Danielle C. Varney
>>
|
|
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)