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Re: Hystorectomy To Sandy
From: Amy (anonymous@obgyn.net)
Tue Oct 14 15:31:41 2003
Sandy,
Good luck with your upcoming surgery. I sure hope it helps you. Isn't
it sad when you can actually look forward to something like that? I
really don't like the idea of having a hysto at such a young age, but
can also say that I can't wait for the day it finally happens! I just
don't see any other option since everything else just provides temporary
relief. And even if a hysto doesn't help me 100%, at least I won't feel
like there is something left that I haven't tried. My thoughts and
prayers will be with you in the next couple months as you get ready for
surgery and go through it. Please keep us posted on the forum after
your surgery and let us know how it is going. Feel free to email me
direct too if you ever want to vent! I have met some of the neatest
people through this forum and find such comfort in talking with others
with this awful disease!
Hugs!
Amy
At Mon, 13 Oct 2003, Sandy wrote:
>
>Jeni & Amy,
>
>I know how both of you feel because I feel the same way. I am 31 years old and have a 3 year old daughter. I have made the decision to have a hyster after trying everything else and having it fail I don't see any other choice. I am scheduled for surgrey for December 2nd. I think we all know that this is not a sure things but at this point it is the last options that I see that I have. I want my life back and the pain pills are not something that I want to stay on forever nor do they help that much so for me I know it is time.
>
>I wish you both luck.
>
>Sandy
>
>Amy Meyer <anonymous@obgyn.net> wrote:
>Jeni,
>I think you and I could be twins except I am 32 and have no kids. I
>have been there, done that too. I am dying to just get it over with and
>have a hysto because I really don't know what else to do. My hubby and
>I are OK not having kids, or adopting later if we change our minds, so
>that isn't a factor in my decision at all. I just want to feel better
>and get my life back! My current ob/gyn just tells me to have babies to
>fix my problems!! UG! And he too tells me I am to young for a hysto.
>Needless to say I am dumping this Doc, as a matter of fact this week! I
>am going to a new gyn. recommended by my boss. I am anxious to see
>what he says and what his views on hysto are. She says he is open to it
>if that is what you want. I just cannot see myself going through lap
>after lap, different birth control pills (I am doing them continuous
>right now-it helped for awhile but now the pain is back ten fold!) have
>done lupron, refuse to try danzanol. I'm with you in that I know a
>hysto doesn't mean a sure fire fix, but I think it is better than
>spending my life too tired to do anything and laying on the couch with a
>heating pad, crying!, because the pain is so bad. At least once I have
>a hysto, I can safely say I have tried everything to feel better.
>
>IF you want to talk about it further, please feel free to email me
>direct. I don't want to rush into a hsyto or anything, but I also
>refuse to feel like my life is over at 32!
>
>Hugs and pain free days!
>Amy Meyer
>
>At Sun, 12 Oct 2003, Jeni wrote:
>>
>>Hi. I am 28 years old, and have been suffering from endo symptoms for
>>18 years. I am considered to have moderate to severe endo. I was
>>fortunate enough to have 2 children, but do not wish to have any more.
>>My endo continues to progress depite the fact that I have tried birth
>>control therapy, continuous birth control therapy (no week of placebos
>>for period), numerous rounds of depo-provera, 2 rounds of lupron, and 3
>>laparoscopies. I feel like I have been there, done that, tried it all.
>>The birth control pills with estrogen made me severely nauseated, and
>>also caused migraines and vomitting. I can successfully take the
>>progesterone only ones, but had trouble remembering to take them on
>>time. I did have some success with the depo-provera for awhile, but
>>eventually that stopped working too. The lupron made me severely manic
>>depressive, and suicidal among other harsh side effects. After the 2nd
>>round of it (I swore the first time it was so horrible I would never
>>take it again, but I was desperate for relief), the manic depression or
>>bi-polar didnt go away after stopping the shots. I refuse to try the
>>danazol due to the severity of the side effects. I had little to no
>>relief after my last surgery. I feel like there is nothing left for me
>>to try. I am seriously contemplating surgery. I know that it doesn't
>>stop the enod in every single case, but what do I have left to try. Most
>>everyone I have talked to say they feel a world better afterwards. I am
>>also having a problem finding a doc who will consider it do to my "young
>>age," even though I know it has been done in younger patients. In one
>>breath they say mine is so severe, but in the other they refuse to help.
>>They say hysorectomy would put me in menopause (duh), and that may not
>>necessarily be the answer, while in the same breath they try to convince
>>me to try the menopause drug(lupron) again. If anyone has any imput on
>>endo and hystorectomy, it would be greatly appreciated. Thanks.
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