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To Cheryl! Hysterectomy

From: Amy (anonymous@obgyn.net)
Mon Oct 13 11:24:47 2003


Cheryl, Hope all went well with your surgery! Keep us posted on how you are doing, and what the procedure was like. I am seriously considering one myself as I don't really have any other options.......Hope it helps you to feel better once you get healed from the surgery.

You are in my prayers and thoughts! Amy Meyer

At Sun, 12 Oct 2003, Cheryl wrote: >
>At Sun, 12 Oct 2003, Jeni wrote:
>>
>>Hi. I am 28 years old, and have been suffering from endo symptoms for
>>18 years. I am considered to have moderate to severe endo. I was
>>fortunate enough to have 2 children, but do not wish to have any more.
>>My endo continues to progress depite the fact that I have tried birth
>>control therapy, continuous birth control therapy (no week of placebos
>>for period), numerous rounds of depo-provera, 2 rounds of lupron, and 3
>>laparoscopies. I feel like I have been there, done that, tried it all.
>>The birth control pills with estrogen made me severely nauseated, and
>>also caused migraines and vomitting. I can successfully take the
>>progesterone only ones, but had trouble remembering to take them on
>>time. I did have some success with the depo-provera for awhile, but
>>eventually that stopped working too. The lupron made me severely manic
>>depressive, and suicidal among other harsh side effects. After the 2nd
>>round of it (I swore the first time it was so horrible I would never
>>take it again, but I was desperate for relief), the manic depression or
>>bi-polar didnt go away after stopping the shots. I refuse to try the
>>danazol due to the severity of the side effects. I had little to no
>>relief after my last surgery. I feel like there is nothing left for me
>>to try. I am seriously contemplating surgery. I know that it doesn't
>>stop the enod in every single case, but what do I have left to try. Most
>>everyone I have talked to say they feel a world better afterwards. I am
>>also having a problem finding a doc who will consider it do to my "young
>>age," even though I know it has been done in younger patients. In one
>>breath they say mine is so severe, but in the other they refuse to help.
>>They say hysorectomy would put me in menopause (duh), and that may not
>>necessarily be the answer, while in the same breath they try to convince
>>me to try the menopause drug(lupron) again. If anyone has any imput on
>>endo and hystorectomy, it would be greatly appreciated. Thanks.
>
>Hi Jeni!
>
>I can totally relate except I'm older than you and dont have any
>children. I'm on my second shot of Lupron and am very sick from it.
>Tomorrow I'm checking in to the Hospital and getting a hysterectomy. I
>really want children, but like you have used up all the options and cant
>take it anymore. I have my medical records from the past 16 years and
>sat down the other day and read my whole life. How depressing!! I also
>journaled during the hard times and now feel sad that some of the best
>times of my life were spent laying curled up on the couch, withdrawn
>dealing with the pain and isolation. My mother had the same problems
>and had her hysterectomy at my age and she feels fantastic!! So do many
>others and I cant wait to get back in the game of Life!!! I understand
>that there are cases where women still have problems, but my uterus is a
>diseased organ and I dont want it in my body anymore. I hope you are
>able to find a doctor who is willing to work with you and not push the
>Lupron. To me, it was the most evil thing I have put in my body. Good
>Luck!




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