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Re: Hystorectomy?

From: Amy (anonymous@obgyn.net)
Mon Oct 13 11:22:42 2003


Jeni, I think you and I could be twins except I am 32 and have no kids. I have been there, done that too. I am dying to just get it over with and have a hysto because I really don't know what else to do. My hubby and I are OK not having kids, or adopting later if we change our minds, so that isn't a factor in my decision at all. I just want to feel better and get my life back! My current ob/gyn just tells me to have babies to fix my problems!! UG! And he too tells me I am to young for a hysto. Needless to say I am dumping this Doc, as a matter of fact this week! I am going to a new gyn. recommended by my boss. I am anxious to see what he says and what his views on hysto are. She says he is open to it if that is what you want. I just cannot see myself going through lap after lap, different birth control pills (I am doing them continuous right now-it helped for awhile but now the pain is back ten fold!) have done lupron, refuse to try danzanol. I'm with you in that I know a hysto doesn't mean a sure fire fix, but I think it is better than spending my life too tired to do anything and laying on the couch with a heating pad, crying!, because the pain is so bad. At least once I have a hysto, I can safely say I have tried everything to feel better.

IF you want to talk about it further, please feel free to email me direct. I don't want to rush into a hsyto or anything, but I also refuse to feel like my life is over at 32!

Hugs and pain free days! Amy Meyer

At Sun, 12 Oct 2003, Jeni wrote: >
>Hi. I am 28 years old, and have been suffering from endo symptoms for
>18 years. I am considered to have moderate to severe endo. I was
>fortunate enough to have 2 children, but do not wish to have any more.
>My endo continues to progress depite the fact that I have tried birth
>control therapy, continuous birth control therapy (no week of placebos
>for period), numerous rounds of depo-provera, 2 rounds of lupron, and 3
>laparoscopies. I feel like I have been there, done that, tried it all.
>The birth control pills with estrogen made me severely nauseated, and
>also caused migraines and vomitting. I can successfully take the
>progesterone only ones, but had trouble remembering to take them on
>time. I did have some success with the depo-provera for awhile, but
>eventually that stopped working too. The lupron made me severely manic
>depressive, and suicidal among other harsh side effects. After the 2nd
>round of it (I swore the first time it was so horrible I would never
>take it again, but I was desperate for relief), the manic depression or
>bi-polar didnt go away after stopping the shots. I refuse to try the
>danazol due to the severity of the side effects. I had little to no
>relief after my last surgery. I feel like there is nothing left for me
>to try. I am seriously contemplating surgery. I know that it doesn't
>stop the enod in every single case, but what do I have left to try. Most
>everyone I have talked to say they feel a world better afterwards. I am
>also having a problem finding a doc who will consider it do to my "young
>age," even though I know it has been done in younger patients. In one
>breath they say mine is so severe, but in the other they refuse to help.
>They say hysorectomy would put me in menopause (duh), and that may not
>necessarily be the answer, while in the same breath they try to convince
>me to try the menopause drug(lupron) again. If anyone has any imput on
>endo and hystorectomy, it would be greatly appreciated. Thanks.




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