ENDO Messages for October, 2003: Re: Hysterectomy for Endometriosis

Re: Hysterectomy for Endometriosis

From: Jauna (anonymous@obgyn.net)
Thu Oct 9 22:03:18 2003

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At Wed, 1 Oct 2003, Tammy wrote: >
>I am 33 years old & have had stage 3-4 endo for 15 years. I have 3
>beautiful children & am done. I am having chronic pain again where they
>had removed my left ovary 5 years ago & my GYN has now scheduled a total
>hysterectomy for me. I also have mittelschmertz & am on medication for
>that. I have heard so many different stories that I'm confused and
>don't know what to do. I need the pain to go away, I can't function
>normally with it. Will hysterectomy help the pain of endo go away once
>and for all?!
>
>Also, I have heard differing things about sexual desire/function after
>hysterectomy, how can the removal or non-removal of the cervix affect
>this? I already have decreased sexual desire for the past several months
>& am very concerned about sex post-hysterectomy.

Tammy-- I had a hysterectomy due to endo. in 2000. I was also in stage 4 and had tried everything. I was diagnosed at 12 yrs. old. My hysterectomy was vaginal and my cervix was taken. One of my ovaries was left. I have been able to stay off of hormone therapy as of yet and hadn't had much problems until recently. For about the past 6 months I have experienced a decrese in sexual desire. When I went to my gyn, I found that it was due to a couple of different things. One -- vaginal dryness (KY liquid- it's wonderful, and non sticky) TWo- slight abdominal discomfort (not nearly as bad as before I had the hysterectomy) which is from my endo returning. I was informed that leaving my ovary put me at risk of relapse(because endo needs estrogen to grow) but taking it put me at risk of bone degeneration (bones need estrogen to stay strong). Your normal catch 22. My gyn has decided to go ahead and take my ovary out and re-laser the micro-endo which was apparently missed the first time. I will be put on a low dose of estrogen add back therapy and monitored and put on calcium supplements with bone density tests every 6 months to one year-- all in all its not that bad... this should be the last one. If you are in a considerable amount of pain and have exhausted the other options-then I think you should go for the hyst.. The worst case senario is you have one more surgery after your hysterectomy to re-laser the endo that wasn't gotten the first time. Your sexual desire will pick up (or at least mine did) once you get out of so much pain. You may have to use lubricant sometimes. Also don't forget to keep up with your Keegel exercises to keep your vaginal muscles strong (if your cervix is taken) and help prevent prolapse. If your ovaries are taken you will eventually have to be on some sort of hormone therapy but it is definately better than dealing with endo. everyday. I hope this helps. Jauna

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