ENDO Messages for October, 2003: Re: Back from surgery (lap)

Re: Back from surgery (lap)

From: Nicky (anonymous@obgyn.net)
Fri Oct 3 17:53:52 2003

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In reply to: Lori: "Re: Back from surgery (lap)"

Lori, you have no reason to be sorry for asking questions that is how you learn about this thing that we all share. I have had problems with endo for a long time. It start like most when I started my period and they were horrible. I was in bed at least two days of every period and after two laps in my teens they said that I suffer from endo. At age 20 I had another lap to clean things up. Then I had another at 23 and then I was able to have both my kids, I am still wondering how I got so lucky, but thank god I was. After my first child I started having problems again and another lap to clean things up. After my second child it started all over again and this time it was worse then all the times before. I was doing the normal bleeding after having a child but after 3 months I still didn't stop, then 6, then 9 so in for another lap to see what the damage was this time. Things got so bad that they had to take my uterus. Then things were ok for about 4 months, no period and no pain, this was a first in many moons, then it started all over again with the lower back pain, the lack of desire and the cramping. My husband and I looked at each other and we were confused. Having my uterus taken out was supposed to stop the cramping. Well, we found out that with endo/scar tissue/adhesions the cramps are there no matter what. My Dr. at the time gave me 6 months of Lupron and put me on BCP which I have never tolerated (I will say the one that I am on is wonderful, I have never had a problem with mood swings, weight, headaches, or anything else) but I was willing to do whatever it took to get rid of the pain. Well, the pain got worse and then still worse. I finally got the insurance to let me see a specialist and after a MRI he thought it best to do another lap. The Dr. told us that once he is inside he will take care of the endo and we found a little mass on the MRI that he would take out. He would also check the overies and see if he left that they shoudl come out. It turns out once he went in that there was no endo to speak of but I was covered in scare tissue and he took that out. He gave my husband pictures and explained it all to him. I am in the process now of recovering and I hope that once this is over I can get back to my life in a semi normal way. It's been a long time since I had NO pain. Well, I am sorry this is long and I'm sorry if I gave you more info then you wanted. I hope that I answered your questions. If you have any more please feel free to ask. Hang in there, Nicky

At Fri, 3 Oct 2003, Lori wrote: >
>So what exactly did they do to you this time around? Did they remove the
>scar tissue? Sorry, I haven't had to go through that yet? What did they
>do durgery on? Please forgive my ignorance...
>Lori
>
>At Fri, 3 Oct 2003, Nicky wrote:
>>
>>Hello everyone, I'm back, well sort of. I am in bed and haven't left it
>>since I got home Wednesday morning at 1:30 a.m. I survived my hours and
>>hours of not eating (total of 21 hours) I still think that is to much to
>>ask. By the time it was my turn in the OR room I was cranky, mad, and
>>emotional. Surgery started at 7:45 p.m (I was scheduled for 6 p.m.) and
>>came out around 10:30 p.m. Waking up was the hardest part I came out
>>throwing up and in so much pain. I came home and have been taking the
>>painkillers every 2 to 3 hours. Today is the first day that I can make
>>it to the bathroom by myself and I am feeling a little better but still
>>very sore and I probably will for a while. I have four incisions and
>>one is about 2 1/5 inches long across my belly button the other three
>>are only about 1 inch long. All in all I survived and the good news was
>>that there was no endometriosis this time, however, the scare tissue was
>>the culprit, it covered my stomach, bladder, colon and bowel. We got to
>>bring pictures home and it looked bad. Dr. told my husband that the
>>scar tissue was causeing all the pain and he feels good about saying
>>that he did not think that it was coming back. Great news, just hope he
>>is right.
>>
>>--
>>Nicky Cattafi
>>

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