ENDO Messages for October, 2003: Re: At what time during the month do you experience the most pain?

Re: At what time during the month do you experience the most pain?

From: Michele (anonymous@obgyn.net)
Fri Oct 3 01:09:26 2003

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In reply to: Jessica: "Re: At what time during the month do you experience the most pain?"

At Thu, 2 Oct 2003, Jessica wrote: >
>Jennifer
>I have not had a normal cycle for a year or so now because of my
>mediacation, but before my first op, my pain was all day, every day. I
>had one polycystic ovary and one massive simple cyst on the other ovary
>and heaps of adhesians tying everything down. Once all this was freed
>up, the pain settled down. Now, if I am ovulating i'll get mid cycle
>pain (this is only really bad if i have a cyst develop)and when i am
>bleeding, the pain builds up until about day 3. I have found that
>eating a relly simple diet (fish, veges, fruit, soup and maybe
>wholegrain rice, green tea, heaps of water) really helps. And when i
>can walk, i like to do some gentle yoga. This settles me down, i get a
>bit worked up when the pain is bad. Try to stay away from fatty stuff
>and coke and chocolate (i find it hard!). Also, I would have a serious
>discussion with your doctor about pain management. There is a new drug
>out here that is an injection of mild morphine that you can administer
>at home, I am in australia, so I am sure you have it there too. Good
>luck!
>>
>>At Tue, 30 Sep 2003, melanie wrote:
>>>I thought at least you deserved a response. I don't think there are any rules about endo -- however from my experience initially first worst during cycle, day before and first days of bleeding, then that plus mid cycle (ovulation), then that plus 3 weeks preceding cycle where it hits me in waves worst in afternoons, early mornings enough to wake from pain early am...... my favorite days/best days were just after cycle. stranglely this month, it seems i didn't have a few days after cycle, rather 1 or 2 moderate (still a few painkillers but minimal) beginning second week after cycle. so i don't know. if you have the really brutal period, it is time to talk seriously to your obgyn and push for more because it does tend to get worse.. even when you think it can't. and yes, it can be so random. it was explained to me that often the best days are after cycle because of progesterone --- and severe pms is a sign of hormone imbalance. ?? trying estroven --- no sign yet,going for a lap friday... that should do more. push for the care you deserve, it is your body and your life.
>>best. given my non-medical background, at a minimum it is a sign of
>>hormone imbalance. especially if you have those insatiable cravings
>>during pms.
>>..
>>jennifer
>>>I pretty much have been at any given time, sometimes in the middle of
>>>the month, then not for a couple of day, and it is random...However, I
>>>almost always have the most pain the week before my period and the first
>>>couple of days of my period.....Is this a normal symptom of
>>>endometriosis?
>>>
>>>Thanks
>>
>>--
>>Jennifer

Hi,

I begin to get pain as soon as I ovulate. The pain is pretty bad and lasts for 2 weeks. Then I have about a 6 day period. The first 3 days are complete hell. Basically I get 1 good week out of every month. This is when I am not taking any medication.

SInce diagnosis in 2000 I have been on Lupron, (never again too dangerous, toomany side effects including migraines, hot flashes and bone density loss) plus the pain returned immediately after the drug wore off. I was on this drug on & off for approx. 1 year. I was on BC pills (skipped the placebo pills) for a little over 6 months. I had migraines, vomiting, experienced break-through bleeding and spotting the entire time. I tried many BC pills. I am surprised that I am not anemic. Oh well, my body had never liked them anyway.

Now I am off all drugs because we are trying for a baby. I have stage 4 endo and have never conceived. I am wondering how long it will take or if I ever will. If it is not soon I feel I may not be able to handle all this pain. It is so tough.

--
Sick Near Seattle

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In reply to: Jessica: "Re: At what time during the month do you experience the most pain?"

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