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Re: Experiences with IC?/ insulin resistance???From: Jodi (anonymous@obgyn.net)Mon Sep 29 08:36:15 2003
My experience with IC was that I think it came on suddenly although when I was in college, I was getting frequent UTI's with no bacteria found in my urine samples. That very well could've been IC. I wasn't diagnosed with IC until 5 years later. That whole episode with UTI's subsided for a long time, probably the whole 5 years. I had one or two, but there were high levels of bacteria in those tests. Then I started to have to pee every time I laid down to go to bed. I would get up to pee 10-15 times before I could finally go to sleep. Each time, a small amount of urine would come out and I'd feel empty, but as soon as I laid down again, it would feel full and I'd get up again!!! IT was so frustrating. Then I started having this weird feeling. You know when you go to the dentist and they put gauze in your mouth between your gum and your cheek and sometimes it gets real dry and uncomfortable? Well, it felt like I had a dry piece of gauze on the left side of my bladder. It was so uncomfortable!! I went to the doc and we thought it was my endo getting worse, but then I had another bladder infection a few months later and she sent me to a urologist. I had a cystoscopy done and he diagnosed me with IC. It sucks, it's not fun to have and there is no cure, but there are things that you can do. Right now, I'm waiting to see an alergy specialist so that I can see if I have an allergy to some foods that I am eating which may cause my IC to flare up. I hope to God that it doesn't get worse than it is. I think the number is about 17% get worse over time and the other 83% just have it the same as when they got it. I hope it doesn't get worse because right now, I have some mild discomfort everyday and I pee frequently, but it's never aweful! There are times, but these times are called "flare-ups" and can last any amount of time from hours to days to months depending on your body and how bad it is. Best of luck to you!!!!! I hope you don't have it, but if you do, we are here for you. Feel free to email me direct if you have any questions about IC and I'll do my best to help. I've had it for about a year and a half and have done quite a bit of research on it. Good luck!!
-- Jodi
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