ENDO Messages for September, 2003: Re: Please Help, I can't find a doctor who seems to care!

Re: Please Help, I can't find a doctor who seems to care!

From: Nicky (anonymous@obgyn.net)
Mon Sep 29 07:25:25 2003

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Hello Heidi, It is very hard to find a Doctor that you really click with. I had a great Doctor in Kansas and we got stationed in Delaware and I had to leave him and start all over. Finally after two years I found a doctor and I am going in for Lap number 7 tuesday night. There are several ways to find a doctor, here on this forum or you can go to several of the Endometeriosis websites (endometriosis Assoc., endometriosis center, endometriosis research center, just to name a few) and they can help you. Most of them have doctor lists that they recommend because the feedback from the members were great. I went on to a military website, since we are in the air force and found the doctor that way. If you would like me to get some names from there let me know by e-mailing me and I will ask. Hang in there. I know that you are on a long hard road, but I will say this, hanging out on this forum has helped me on the emotional side and I know I am not alone. Talk with you soon

--
Nicky
At Mon, 29 Sep 2003, heidi wrote:
>
>I am new to this forum but I can say I know a lot about pain as everyone
>else here does.  My problems started about 10 years ago but the endo
>didn't actually become a serious pain problem till after I had my two
>kids.  I thought pregnancy made Endo go away, not in my case it made a
>monster out of my female organs! I have been on Depo Lupron, tons of B/C
>and painkillers, plus I have cystic ovaries.  I had a Lap about a year
>ago and the Doc tried to get as much Endo as he could and also removed a
>grapefruit size mass from my left ovary.  Well ever since I had that
>Lap, the doctor seems to think I am a lost cause and wonders why I am
>still in so much pain.  He thinks the lap should have cured this whole
>ordeal.  So I got another opinion and they tried to put me on a drug
>that made me violently ill.  I told them what happened and they said to
>keep taking it and they didn't know what else to give me.  Well I have
>been looking all over in Az, for a specialist in Endo that takes my
>insurance but cannot find one.  I am at the end of my rope because of
>the pain and no one wants to listen to me anymore, where do I go from
>here.  I am sick and tired of being sick and tired and in constant pain.
>I cannot do the things I love to do and I am so tired I have to find the
>courage to get out of bed each day.  The pain has definitely threatened
>my job and my family, my marriage.  I can't take to many more days off
>work.  I can't play with my kids and my sex life is threatened every
>day.  Can I please have my life back?????? If any one knows of a doctor
>in Arizona that can give me life back, I would appreciate it.  Thank you
>for listening.
>
>--
>Heidi rckattea@cs.com
>

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