ENDO Messages for September, 2003: Re: Experiences with IC?/ insulin resistance???

Re: Experiences with IC?/ insulin resistance???

From: holly (anonymous@obgyn.net)
Sun Sep 28 16:06:32 2003

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i have endometriosis, graves disease (auto-immune thyroid stuff), and interstitial cystitis. the last time i talked with my doc about it, he said they are all probably auto-immune. :(

to make sure it's IC, you need to get a cystoscopy done. they should do it under general anesthesia. i had one done during my last laparoscopy.

my gyn referred me to a urologist. she gave me some meds to take and told me to change my diet. i didn't do a very good job getting all the pills down (there were about 8 or 9 a day at different times during the day), but i did follow the diet really strictly. and it helped. now i'm off all the meds and only follow the diet. i feel pretty darn good too.

you can find info about IC and find the diet changes at http://www.ichelp.com that's the website my urologist sent me to. also http://www.ic-network.com has an online cookbook that uses only "safe" foods. sometimes i slip and eat something i shouldn't and my bladder tells me in a few hours.

hth

At Sun, 28 Sep 2003, Jennifer wrote: >
>I saw a new doctor recently, like Thurs. He tossed out a new extra
>possible problem to me: IC, intertestil cytisis (sp)? I glanced at the
>archives.... for anyone who has this IC etc, does it just suddenly come
>on? like over a period of months, it is definitely getting worse and the
>difficulty with walking aside with all the general issues of peeing are
>there... I just don't understand how I suddenly develop one more thing.
>Insights? It does appear that several of the women have both endo &
>ic... I see him again tues and I will ask more questions,your
>experiencese in the meantime would help me be more informed. I was just
>a bit overwhelmed thursday .. and I have to say pleasantly surprised.
>He listened to me and considered all the issues going on in my body now.
>These were 2 extra possiblities: IC and insulin resistance... I was
>wondering if anyone else has been diagonosed with these. And more, if
>they just suddenly started over a period of months... my immune system
>must be in a rut since I also have constant cold sores since last
>period. Thanks for sharing your experiences.
>
>--
>Jennifer
>

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