ENDO Messages for September, 2003: Re: Crushed

Re: Crushed

From: anneHL (anonymous@obgyn.net)
Wed Sep 24 12:50:09 2003

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In reply to: Lea: "Re: Crushed"

Nicky:

I STRONGLY second what Lea suggests. You need to let your doc know what this jerk said to you. And his IS a callous jerk. I work in health care. There is nothing, absolutely nothing, worse than taking away a patient's hope. If your physician agrees with what this guy told you, find a new doc.

I was diagnosed with Stage IV bladder endo that was completely encasing my bladder in February. I was told by my long time GYN, that I completely trusted, that there was *nothing* to be done other than six months of Lupron and a total hyst and even then I probably would only seem partial pain control.

I got multiple second opinions and found a new GYN. I elected to have a very extensive lap excision and am told I am endo free and am undergoing six months of Lupron therapy as a follow up.

I still had pain post-operatively. After a couple months of multiple therapies, I was diagnosed with IC. After starting Elmiron therapy and contining my pain regimen, I am actually seeing a huge reduction in pain and believe in a few weeks that I WILL become PAIN FREE.

There is hope for you too. If you don't find it with the doc you are currently seeing, move on. Find another. That can be incredibly hard to do. Leaving the GYN that I trusted after many years was very difficult - But was one of the best decicions I made for my health.

Good luck to you and don't lose hope.

--
AnneHL

feel free to email me if you need to:  anne_henley_lessing@hotmail.com

At Wed, 24 Sep 2003, Lea Harth, wrote:
>
>Nicky,
>
>I strongly suggest you speak with Dr.  Tureck about what this other
>doctor(?) in the office said to you.  While this is all still fresh in
>your mind type it out and print it and take it with you on your next
>appointment.  Make sure that you schedule a long appointment because you
>and the doctor need to have a very frank and open discussion about what
>your expectations are, what his expectations are and make sure that you
>are both working along the same path.
>
>If it turns out that this is not so and he is just 'going through the
>motions' as this other guy intimates, then perhaps you need to find a
>new doctor.
>
>If this guy was talking out of turn and had no real business speaking to
>you that way and saying those things to you (which were pretty harsh no
>matter what his credentials are) then Dr.  Turek needs to know so he can
>put a stop to it before this guy unleashes his point-of-view (venomous
>spew) on someone else.
>
>Better to get this ironed out now before you go through any more 'meds
>trials' or other uncomfortable procedures only to have to repeat them
>again with someone else.
>
>At Wed, 24 Sep 2003, Nicky wrote:
>>>>snip<<<
>>Well, over the weekend I started throwing up blood from the painkillers
>>that I was taking that my regular PCM gave me.  Dr.  Tureck said to
>>continue with them until we had all of our information.  On Monday I
>>called and left a message and yesterday I get this call back from one of
>>the Fellows that works in his office.
>
>--
>Lea Harth, Managing Editor
>OBGYN.net
>

Next message: donna: "Negative laparoscopy... But ALL of the endo symptoms"
Previous message: Courtney: "well another doctor's apt. under the belt...."
In reply to: Lea: "Re: Crushed"

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