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Re: Crushed
From: Amy (anonymous@obgyn.net)
Wed Sep 24 10:05:14 2003
Nicky,
I echo Jodi's thoughts. Don't give up! There are more unsympathetic
doctors than seem to be understanding ones. My current Doc (who I have
now wrote off and am seeing a new one in October) always tells me that
my cure is to have babies! Your Doc was right that there is no cure for
endo, but I don't think he should have been so discouraging! Please
don't let him upset you. It is bad enough to live with endo and all the
physical and mental games it plays without some stupid Doc making you
feel worse! Just write him off as the butthead that he is. No one
should ever tell you to give up! I know there is no cure for my endo but
I know I will NEVER give up the fight!
Hang in there!
Amy
At Wed, 24 Sep 2003, Jodi wrote:
>
>Nicky honey, don't give up!!!!! Sometimes doctors who work "down there"
>don't deal well with being sympathetic or compassionate. They've lost
>touch with the human-side of being a doctor. There is ALWAYS hope.
>Never forget that. Specialists around the world are always looking for
>new medicines and cures. There will always be hope as long as we have
>this disease!! I have Endo, IC and IBS and I have been told that new
>drugs are being tested all the time and they may find a cure for IC
>within the next 10 years. I know that is just speculative, but it is
>full of hope as well!! We are all here for you and we can help guide
>eachother through this.
>
>Doctors can be so stupid. My doctor called me a hypochondriac!!! I went
>in to see her because I had pressure on my left side. They found a
>cyst. They removed it. I went for the follow-up where they told me
>that they found Endo. I went on Lupron and after a couple years, sever
>pain and discomfort came back. I went to the doc thinking that the endo
>was back so she put me on Depo. I was peeing about 10 times before I
>went to bed. I was then sent to a urologist and had a cystoscopy done
>where they diagnosed me with IC. A few months later, I returned to the
>doc with immense pressure. She told me that it was probably endo again!
>I insisted on having a catscan and ultrasound done to rule out another
>cyst. There was nothing there, but she decided to send me to a
>gastroenterologist to have my stomach looked at whereupon I was
>diagnosed with IBS. Then a few weeks later, as I was washing, I found a
>lump on my vagina. I couldn't get an immediate appt., so I had to wait
>a few days. I went to my doc and she claimed she couldn't feel anything
>and then asked me if I was depressed!!!!!!!! She then said that she
>thought I had an obsession with having cancer!!! It turned out that it
>must've been an ingrown hair because it went away. Point of the story
>is, doctors can be really really really stupid and insensitive. They
>see patients everyday and they become numb to the fact that these
>patients have to live with these diseases and with pain. They treat
>people like patients and not like people with pain. Do NOT let this get
>you down. Just because someone is a "specialist" does NOT make them a
>good doctor. There is always hope. As you've read from my story, I got
>blow after blow, but I remain hopeful. There is light at the end of
>this long tunnel. It may take time, but we will all be okay.
>
>At Wed, 24 Sep 2003, Nicky wrote:
>>
>>Hello everyone,
>>
>>I had a horrible thing happen to me yesterday and need some advice from
>>all of you if you don't mind.
>>
>>Last Tuesday I saw this new doctor for the first time, Dr. Tureck at
>>Penn University and he gave me some hope back. He is the ninth doctor
>>that I have seen but my first specialist. He seemed really nice,
>>knowledgable and concerned. My husband liked him too, and that is a
>>first. He told me that he would not offer any treatment plans or advice
>>until he has all of his data and test results. He scheduled an MRI
>>which was done on Monday.
>>Well, over the weekend I started throwing up blood from the painkillers
>>that I was taking that my regular PCM gave me. Dr. Tureck said to
>>continue with them until we had all of our information. On Monday I
>>called and left a message and yesterday I get this call back from one of
>>the Fellows that works in his office. I explained to him what happened
>>and that I stopped taking the percocete and needed a replacment for it.
>>Well, he went on to tell me after I gave him the list of drugs that we
>>had tried that I maybe beyond help, that endometriosis is a horrible
>>monster and that there is no CURE, I felt like saying really in the last
>>11 years that I have had that I did not know that. I think that most
>>people who havew had a battle with this knows that. Anyway he went on
>>to say that he was not sure what they could do as a specialist that my
>>normal GYN couldn't do. I was shocked and crying and growing angery by
>>the minute. My husband was sitting next to me as this was happening and
>>ask when this guy was going to take a breath, it was as if he had
>>started and was rolling down a hill and couldn't stop. He never said
>>one thing that was positive and when I said that he had just crushed any
>>hope that I had he said that this was the reality of this. He would
>>rather be honest as he said they give my false hope. Well, know I can't
>>sleep and I am mad and I am hearing what he said over and over. I don't
>>what to believe that there is nothing that they can do. I am not asking
>>them to cure something that they can not do but if their method is just
>>to crush any hopes what good are they doing for the emotional side of
>>this? I have never been told to give up until now. I have never thought
>>of giving up until last night.
>>What should I do?? What can I do??
>>
>>--
>>Nicky
>>
>--
>"Don't worry 'bout a thing. Cuz every little thing is gonna be alright."
>
>-Bob Marley
>
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