ENDO Messages for September, 2003: Re: New here....help regarding endo and LIFE!!!!

Re: New here....help regarding endo and LIFE!!!!

From: Amy (anonymous@obgyn.net)
Wed Sep 24 09:37:40 2003

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Reply: sam: "Re: New here....help regarding endo and LIFE!!!!"

Erin, Sorry to hear you too are battling endo and all the life problems it brings. My sex drive is pretty non-existent too. I do take BC but I think the lack of sex drive is now more mental. Hard to get into sex or get in the mood when you know it will bring pain and/or bleeding during and after. My husband is great and always supportive, but like you he can always tell that I am not really into it and then feels bad. I haven't found anything that increases my sex drive, but since I think mine tends to be more mental, I'm not sure anything would help anyway. For the pain, I take lots of Advil or Naproxen (Aleve). I also do not want to take any strong narcotics because I don't think I could function throughout the day.

As far as sex: Some things that help me are different positions (me on top helps because I have some control), taking Advil ahead of time (this requires planning sex but that is pretty much the way it is for us-plan it on a day when the pain is manageable. Definitely not very spontaneous!) and having my hubby massage me first. I find that if he gives me a massage or a good back rub, it helps to relax me and take my mind off the pain. AFter sex if the pain is bad, I eat another Advil or two and lay on the heating pad. Sucks bad!!!

Hang in there and email me direct if you want to vent or talk further.

--
Amy Meyer

At Tue, 23 Sep 2003, Erin wrote:
>
>Hi there...My name is Erin and I am 28, diagnosed with stage 4 about 3
>years ago.  I have had 2 laps...the last with laser ablation and
>uterosacral nerve ablation over a year ago.  After that I tried IUI
>(with no success), only to have the Clomid bring my endo back 2 months
>after surgery.  Since then we have been trying to hold on until my
>husband gets a full time job with his company (they cover IVF).  I have
>tried Continuous BCP's, which help with the pain, but KILL my sex drive.
>I have since gone off them, but my sex drive has not returned and now I
>have periods, and with periods come pain.
>
>My problem is this...Every time I bring this up to my OBGYN, I get the
>feeling that she is blowing me off.  I have suggested testosterone
>cream, and she says she does not prescribe that.  I have been taking
>Avlimil, not helping much.  This is really having an effect on my
>marriage.  DH is supportive, but he knows that when I do have sex with
>him, I really am not into it and that bothers him (understandibly so!)
>
>I refuse to go on narcotic pain killers, they snow me and I can't live
>my life like this.  I need advice on sex drive and pain relief, any
>suggestions would be greatly appreciated!!!
>
>--
>Erin
>
>--
>Stage 4 endo dx 2/01 - Laps in 2/01 and 2/02
>IUI x 3 (failed)
>Awaiting insurance covering IVF
>

Next message: Marlene: "Re: Size of cysts?"
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In reply to: Erin: "New here....help regarding endo and LIFE!!!!"
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