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Re: Please, is there someone to talk to? To Shelly from Amy

From: Amy (anonymous@obgyn.net)
Wed Sep 24 09:26:14 2003


Shelly, It is amazing isn't it, how Docs can be? I really don't like the idea of a hysto this early in life, and don't even know if I can find a Doc who would do once since I am only 32, but I know that I cannot continue to live my life in extreme pain. I feel like I have no life and that I am cheating myself and my husband. I can't do anything anymore. Can't work out, sex is usually painful, riding in the car for long periods of time kills me, can't sleep, limp around at work all day because of the pain, etc., etc., etc. At this point I am just hoping the new Doc I see in a couple weeks will at least listen to me and not tell me to have babies to solve all my problems!

Sorry that you cannot take BC or hormones. I cannot imagine how much worse my endo would be if I was not on BC. There are a couple different kinds of BC that give me the auras and migraines, so I avoid those. The one I take now (Lo-Ovral) doesn't give my the migraines thank goodness. I usually just suffer through the pain and take Advil. Have thought about asking for something stronger, but like you am afraid that I would end up dependent or addicted. And I just started an anti-depressant earlier this year. It at least helps keep me more mellow. I am a moody person anyway and the endo makes me even more so. I am now at least more laid back and can take things in stride a little better.

Good luck in your Endo battle and hang in there! Keep in touch if you want and feel free to email me direct at either this address or my work address: anonymous@obgyn.net

Hugs! Amy

At Tue, 23 Sep 2003, Shelly wrote: >
>Amy,
>
>It is so amazing how different docs are. I have a lot of pain, I am in
>my early 30's. I have had 2 laps the second one they took all of my
>tubes. Now my docs want me to have a hyst. I however am the one
>putting it off. I keep telling myself one more year. Maybe it will get
>better.
>
>I also can't take any hormones due to migrains with aura. The only
>thing working for the pain was percocet. I needed to get off of that
>though, I come from an addictive family and I was starting to scare
>myself on the Percocet. Now I just take anti-depressants and it has
>been helping a little with the pain. But these days I just suffer
>through the bad days.
>
>--
>Shelly
>
>At Tue, 23 Sep 2003, Amy wrote:
>>
>>KC,
>>I cannot relate exactly because BC does help me, but I just wanted to
>>email you back and say that I can definitely understand endo! I am
>>opposite of you: Low Stage 3 endo, not much adhesion or scarring, yet
>>SEVERE pain. I am getting ready to go to a new Doc next month and don't
>>know what that will bring. Probably another lap. I also don't have
>>enough sick time left this year, so any surgery I have cannot happen
>>until next year. I personally would love to have a hysto but so far,
>>most Docs won't do it because I am only in my early 30's. They don't
>>seem to care that my hubby and I don't care if we have kids-the ultimate
>>goal for both of us is for me to feel normal again.
>>
>>Have you tried any herbal treatments or a diet change? I know many women
>>have had some relief with this. I haven't done either. I take
>>anti-depressants so I can't take any herbal supplements. I have also
>>heard that caffeine can make endo worse. I am not yet ready to give up
>>my morning coffee so I haven't tried that, but it may be something for
>>you to think about.
>>
>> Feel free to email me direct if you ever want to vent!
>>




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