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Re: I can't even tell where the pain in coming from any more
From: Jennifer (anonymous@obgyn.net)
Tue Sep 23 13:32:34 2003
At Tue, 23 Sep 2003, Courtney wrote:
>Hi Courney, hope your appt goes well tomorrow -- it sounds promising. I have been disappointed on several occasions after leaving an appt. I am going to see Dr. Cook on Thursday and I hope he can do something -- I find his website helpful/hopeful. Esp b/c he seems thorough and has several techniques for minimizing adhesion regrowth. I did a phone consult with him in July, and I would definitely recommend that. (http://www.drcook.com) I would even look at his site today if possible (if you haven't yet) as prep for your appt tomorrow -- and I find it a useful reference/resource.
I don't think I could handle the idea of surgery every 2 years -- I have
started macrobiotics which seems to help, though I have been bad this
week and had a few coffees since my cycle really hit new levels this
turn. I tried some of the herbal/natural stuff -- I used to do yoga but
don't now, but if you can it would help. There is an endonatural group
on yahoo that is worth looking at. From what I read, the greatest
success with natural therapies is after a lap if it has gotten really
bad. I did find accupuncture effective at delivering quick, immediate
relief -- It is dismaying when you start to feel hopeless and that is
what this group is for -- shifting that feeling. I really don't think
any of us actively chose to take painkillers, they can become a
necessity for some level of functioning - as a temporary measure. Keep
us posted,
>Jen,
>Thanks for replying to my posting. I am truly at a loss. I really do
>feel confident in my doctor. My first one was a quack and totally
>missdiagnosed me by missing all of these other issues I have going on. I
>feel like all I do is take pain pills. So frustrating. YOu're right,
>it's amazing to me that I'm starting to feel crazy and that somehow this
>is all in my head because there is no easy solution to get away from it.
>I've finally been able to get an apointment tomorrow with my doctor
>again. He is one of the chief docotors at the reproductive center I go
>to and sometimes doesn't see patients because of his research. We'll
>see what he says tomorrow but I know the option is another surgery. He
>seems to think I'm facing one every two years. Nothing that sounds like
>a good option to me. I have been thinking about accupuncture but wasn't
>sure how successful people had been with the treatments.
>
>At Tue, 23 Sep 2003, Jennifer wrote:
>>
>>At Tue, 23 Sep 2003, Courtney wrote:
>>>Hi, it is amazing that the entire process can make a rational female feel insane, and question herself at such a level. I don't know about mild endo -- one of the doctors I was referred to thought it seemed fairly mild, however as I look at an op report, if it is on the bowels, wrapped around an ovary, and the ovary is attached to the pelvic wall, plus other little adhesions -- then maybe it isn't much to him but it did hurt, alot. My pain is significantly worse now -- for quick relief I found accupuncture helpful. It didn't have alot of staying power, but I felt really fresh and my mind was clear and the pain evaporated for a few hours -- I felt like me and that was wonderful. I have been trying a few alternatives but cannot say definitively that x works, not enough time to see results-- email if you would like to know more. In your laps, did they look thoroughly for the endo? It can hide. -- Hang in there.
>>
>>>I am totally at a loss these days. I have had two laproscopic surgeries
>>>and have only been diagnosed with mild endometriosis but I have terrible
>>>pain. In addition the endometirosis I have had a polyp that blocked one
>>>of my fallopian tubes which caused the need for a DNC. I also have a
>>>hole in the peritoneal ligament which attatches you uterus to your back.
>>>The nerves around this have been cauterized once but have regenterated.
>>>The back pain I'm experiencing is so emense that I have trouble getting
>>>in and out of bed. I feel like I'm totally loosing my mind. Luckily
>>>the guy in my life is very supportive and helpful but I feel like I'm
>>>"becoming" the pain.
>>>I have recently ended up in the emergency room due to kidney stones
>>>which they seem to think were caused by endo attatching itself to the
>>>uretur and pinching it off. Now I'm dealing with that pain on top of
>>>everything else. I just needed to chat with other folks that might have
>>>any idea of what I'm going through. My hormones are all askew so I'm
>>>emotional all the time. I feel like I ran a marathon everyday and have
>>>to keep going. I'm trying to seek out some alternative medicine
>>>treatments to deal with some of this pain but I just don't know where to
>>>start and which part of the pain to deal with first. Just feel totally
>>>hopeless this month.
>>
>>--
>>Jennifer
>>
>--
>Thanks for listening,
>Courtney
>
--
Jennifer
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