ENDO Messages for September, 2003: Re: Please, is there someone to talk to?

Re: Please, is there someone to talk to?

From: Amy (anonymous@obgyn.net)
Tue Sep 23 08:22:17 2003

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KC, I cannot relate exactly because BC does help me, but I just wanted to email you back and say that I can definitely understand endo! I am opposite of you: Low Stage 3 endo, not much adhesion or scarring, yet SEVERE pain. I am getting ready to go to a new Doc next month and don't know what that will bring. Probably another lap. I also don't have enough sick time left this year, so any surgery I have cannot happen until next year. I personally would love to have a hysto but so far, most Docs won't do it because I am only in my early 30's. They don't seem to care that my hubby and I don't care if we have kids-the ultimate goal for both of us is for me to feel normal again.

Have you tried any herbal treatments or a diet change? I know many women have had some relief with this. I haven't done either. I take anti-depressants so I can't take any herbal supplements. I have also heard that caffeine can make endo worse. I am not yet ready to give up my morning coffee so I haven't tried that, but it may be something for you to think about.

Feel free to email me direct if you ever want to vent!

-- Amy Meyer

At Mon, 22 Sep 2003, kc wrote: > >I posted last week and never had anyone reply. I really would like to >talk with someone close to 44 who has stage 4 endo and does not respond >to >birth control pills as a treatment option for irregular >bleeding/spotting. >Today I was told to stop my 2nd brand of BC pills. I have spotted since >July and since starting BC pills the spotting has gotten worse. This >weekend, I passed a gross off-white tissue, had cramps and know this >was not a period. I feel it was side eff. of the BC. I called the dr. >and was told after being on the pill for 3 months and 2 brands to >totally >stop. The nurse said I would probably really bleed and if I go through >more >than 6 pads to be sure and call back. I love this office/dr./nurse, but >feel because I am 44 and not planning on kids again(ha no chance >anyway), >that its time for the knife! I know I have endo EVERYWHERE, but I am >not in alot of pain considering the amount of endo. Is there anything >else to do or take. The nurse said I am one who does not respond to >the hormonal treatment. I do not have enough sickleave at this time for >a hyster. Any advice or listening ear? > >-- >k.c. >

Next message: Jennifer: "Re: I can't even tell where the pain in coming from any more"
Previous message: Courtney: "I can't even tell where the pain in coming from any more"
In reply to: kc: "Please, is there someone to talk to?"
Next in thread: Eva: "Re: Please, is there someone to talk to?"
Reply: Eva: "Re: Please, is there someone to talk to?"
Reply: Michelle: "Re: Please, is there someone to talk to?----for Amy Meyer"
Reply: Shelly: "Re: Please, is there someone to talk to? To Amy"

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