ENDO Messages for September, 2003: Re: Ovarian Remnant Syndrome/ Residual Ovary Syndrome

Re: Ovarian Remnant Syndrome/ Residual Ovary Syndrome

From: anonymous (anonymous@obgyn.net)
Mon Sep 22 09:54:27 2003

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At Wed, 29 Jan 2003, silentwhispa wrote: >
>Hi all,
>
>I wrote back in December asking for help regarding the re-occurance of
>endometriosis in a post hysterectomy woman. (aka me)
>
>Back then we all thought yes this was the most likely cause of the pain
>i had been getting, but after seeing a specialist they were perplexed as
>to why it was cycling since both ovaries had been removed and the
>estrodial implant i have had gives a constant amt off so therefore
>shouldn't cycle.
>
>Well i stuck to my guns and wouldn't back off with the fact that it DOES
>cycle, and now they think that it could well be "Ovarian Remnant
>Syndrome / Residual Ovary Syndrome... which is when a small fragment of
>ovary is left behind at the tying off point of the blood vessels when
>the hysterectomy is performed. This can then grow to a degree and is
>massed in the adhesions and is very common in women of multiple surgerys
>and endometriosis/adhesion sufferres.....
>
>I am having an ultrasound next week and this should find it if it is
>indeed this, but it sure sounds hopeful, and i dont feel like im banging
>my head against a wall with Dr's finally, altho this could change if it
>shows nothing. LOL.

I have just been diagnosed with ovarian remnant syndrome. I am wondering what the doctors gave you as choices to resolve the problem. I have two large ovarian cysts as a result that are not resolving on their own. I am having a lot of pelvic pain and can tell that my endometriosis is back. My doctor wants to put me on birth control pills first and then see how that goes. If that doesn't resolve it then my last alternatives are either laparotomy or radiation. Just wondering. I plan on getting a second opinion. I feel so hopeless as this seems like a put it off approach and I will probably end up with the surgery in the end. I have been so depressed as I had the hysterectomy to resolve all this stuff and I cannot believe I am having to eatl with this again. HAB >
>Anyway, i just wanted to let you all know of this discovery, and you may
>know of it already, but incase any of you didn't and were having similar
>problems and finding no one to listen, then its possibly something you
>can mention to your Dr as a possibility.
>
>Also if there are any of you out there who have been diagnosed with
>this, would love to chat and find out more about it, and what treatment
>you had.
>
>--
>Anyway, take care all......
>Feel well,
>
>Silentwhispa
>

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