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Re: Anyone with hip associated with endo?
From: kim (anonymous@obgyn.net)
Wed Sep 17 14:35:01 2003
At Mon, 10 Mar 2003, Pam wrote:
>
>Kim,
>
>I had physical therapy for months and it only made my pain worse. Is your pain in your lower back and do your hips continually hurt? My pain in my back worsens throughout the day depending on what I've done physically that day. My hips hurt at night mainly from the pressure of sleeping on my side,although I am aware of the dull ache in the hip/buttock area during the day. Do you have one hip that hurts more than the other? I do, my right. I toss and turn all night and end up on my back, which hurts continually. My doctor prescribed Ambien from sleep and it seems to help a little. I'm afraid of getting hooked on these pill though. She swears they are non-addictive. She has prescribed Lupron, which I was opposed to taking, but she wants to exhaust all avenues before performing a hysterectomy. Have you thought about finding a doctor who specializes in excision of the endometrial tissue. I've read that this is a better procedure because it gets all the Endometriosis. If this is true, then why aren't more doctors doing this procedure? Why are so many woman on this site about to undergo a radical hysterectomy if it's not even a sure thing to get rid of this disease? I am so confused as to what to do. I wish you luck with your back/hip pain. I've read and also taken magnesium for hip pain. It's a natural supplement you can find at any GNC. I think 250mg is the recommended dose. I hope this helps some. Please feel free to e-mail me. anonymous@obgyn.net
>Thanks so much for responding.
just wanted to say that I had a complete hysterectomy a year ago, my
back and hip pain are unbearable!!!!! so if you think getting a
hysterectomy might help with the pain, mine is worse!!!! Good luck!!!!!!
Kim
>Pam
>From: kdrury To: Multiple recipients of list ENDO
> Sent: Monday, March 10, 2003 11:55 AM
> Subject: Re: Anyone with hip associated with endo?
>
> Pam it is so weird, I also have had endo for several years and have severe back & hip pain. When I went to my doctor he thought since I had wreck that was what was wrong. So after several months of physical therapy TWICE! I'm still in pain. And now he wants to do a hysterectomy.
>
> Hope we can get relief soon.
> Kim
>
>>> ----- Original Message -----
> From: Pam Waters
> To: Multiple recipients of list ENDO
> Sent: Sunday, March 09, 2003 9:40 PM
> Subject: Anyone with hip associated with endo?
>
> Thur March 7,
>
> Amy, I have spent the last 3 years with back/hip pain. I was diagnosed with
> endometriosis in my twenties. I've had a D&C, three or four
> laparoscope's(I've lost count) and many years of infertility treatments,
> including, three articificial inseminations., GIFT and two Invitro
> Fertilizations. I am now 43years old. When my pain started it felt like
> bruises on my hips. I can't even sleep on my sides at night anymore. I
> have been sent to Physical therapists, who couldn't figure out why I had
> pain in hip/back area. Yet they still had me doing six months worth of
> therapy which left me in more pain than I started out with. Next I was seen
> by a round of Orthopedic surgeons, one of which was at Bethesda in Maryland.
> The President is seen there for goodness sake!! Not one of these doctors
> could find anything other than a little degenerative disc problem. Finally
> I went to my gyn and asked him if my back /hip pain could be associated with
> my Endo? He said it was a possibility, that perhaps the endo had attached
> itself to the some nerve endings in my back. He did another laparoscopy and
> removed what he could of my endo. We were hoping this surgery would help
> with the back /hip pain. I was hopeful after the surgery because I wasn't
> in pain anymore. Unfortunately the pain slowly came back after several
> weeks. After that he suggested I go to a Pain Clinic, which I did. The
> doctor there put me on narcotics my body cannot tolerate. Because my
> husband is in the Navy, I am seeing Navy doctors here at Balboa in San
> Diego. We moved here this past July,2002. Since then I have been sent to
> another orthopedic surgeon who, by some miracle was a woman.She is convinced
> the endo and back pain are related. She then sent me to see a Gyn who
> promptly did an endo biopsy and tried to put me on Lupron injections. By the
> time I left his office I was drained and felt as if he thought this
> medication would make it all go away. Unfortunately for me I've been down
> the Lupron road before (hotflashes, night sweats, mood swings). I refuse to
> put myself into medically induced menopause. Also, I know this will not
> help with my back/hip pain. As an aside to this I have been seeing a pain
> specialist who has done three Epidural back injections and they have done
> nothing to ease my agony. I have lived in pain far too long. I want my
> life back. I am at the point where I am willing to undergo a complete
> hysterectomy if it will relieve my suffering. I know this doesn't help your
> pain, but I wanted you to know that you are not alone. You are not crazy
> and there are other woman out there who will listen. To me that is a
> comfort. Today I have this letter with me in hopes my new doctor, a woman,
> who will understand what I've gone through and help me.
>
> Pam Waters
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