ENDO Messages for September, 2003: Re: I need endo friends

Re: I need endo friends

From: Kristin (anonymous@obgyn.net)
Tue Sep 9 23:43:22 2003

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At Thu, 26 Jun 2003, Michelle wrote: >
>I was told i had mild endo 4months ago. Since i have had it lasered
>away it has come back. Im taking my bcp back to back without breaks but
>ive had some spotting which I have found has given it energy. Im
>constanly in pain. Some days are worse and i have attacks. Im living
>on painkillers at mo which i hate as ive always been against drugs. My
>social life is messed up. Im 21 and havent been clubbing with my girls
>in months! :( Id love to make some endo friends to help me through this.
> x Michelle x
>
>At Wed, 18 Jun 2003, anonymous@obgyn.net wrote:
>>
>>I'm such an emotional mess, I'm sitting here teary eyed. Geesha, I'm
>>glad we could all help you but I'm sorry you are still in so much pain.
>>It seems like a never-ending battle with Endo but it will get better.
>>Keep on keepin' on and vent when you feel the need, we are all here for
>>you. Sending warm thoughts your way!
>>
>>At Wed, 18 Jun 2003, Geetha wrote:
>>>
>>>How can i ever thank you all? Only by being there when you all need me
>>>the way i needed you in these recent days. I am not really painfree in
>>>any way whatsoever. The pain is as bad as ever and in fact it is worse.
>>>But the strength to take the pain is back. The faith and the hope that
>>>we all will be free one day is back. You all have reinforced by belief
>>>once again that there is always a light at the end of the dark tunnel.
>>>Thank you all for being that light to me. Without you all I would be so
>>>lost. Thank you for keeping my faith and for helping me live and fight
>>>this disease. I love you all more than i can ever put into words. You
>>>mean more than any words could ever describe. And of course you all are
>>>first in my prayers for painfree days. Thank you all for everything
>>>once again. I am alive and i am happy to be alive... thanks to you
>>>all. HUGS :)))))

-- Hi Michelle,

I just read your email from this past June and am wondering how you are doing. You are the exact same ge I was when I was first diagnosed (after a long, arduous, painful summer) with endo. I was given every annoying treatment in the book (bc pills, lupron, you name it) and finally had laser surgery. I got worse initially...BUT I've had only very mild intermittent symptoms ever since--I'm now 36. I am having symptoms again...ughh!! But I want to reassure you that this WILL NOT ruin your life!!! :-) I promise!!!! You will be 100% fine and will probably have really long stretches with no symptoms. The main thing is to understand that it's not in your head. You need to be assertive with your doctors and you need to be good to yourself. Distraction (cut boys, etc.) always helped me. You WILL be able to go out and have fun again soon. You are soooooooo young and you have everything to look forward to. Chin up girl. Now take some of those pain killers and go out dancing anyway!!!!

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