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Re: Are these symptoms of Endometriosis??
From: Robyn (anonymous@obgyn.net)
Tue Sep 9 09:35:26 2003
Hi Kim,
I was just browsing through and saw your post. I just had a lap done
last month, that confimed that I did in fact have endometriosis, so I
thought I would let you know how my experience was. First off, the
surgery wasn't bad at all. I had some pain from the gas but I just
layed flat for a few days and it helped a lot. It can settle in your
neck,shoulders,chest. So laying flat helps it. Actually, I layed down
anyway because you are going to be sore for a few days at least. Walking
around wasn't a problem it was getting up out of chairs that was the
worst and that even was minimal. I didn't have so many cuts like
Michelle did. They just went through my belly button. So I had some
gauze and tape over my belly for a couple of weeks. I think this is
uncommon for some, but I am overweight and had some drainage (blood and
fluid) from my belly button for a while. But I also got a staff
infection in my belly button that some meds cleared up nicely. Really
it isn't that bad. Don't let me scare you! I was scared at first too,
don't worry we all do the first time. As for the endo, he is putting me
Lupron shots for the next 9 months. It is supposed to put me in a state
of pseudo-menopause (fake menopause). I guess it is supposed to help
with the pain and I wont get a period after a while. But, I have just
had one shot so far, so I haven't had any relief yet. Looking forward
to that though! It does sound a lot like you might have it, I say that
because I have some of the same symptoms as you do and I know I have
endo. Unfortunately the only way to tell for sure is to have the lap
done. Actually for me it was kind of a relief that they found it
because for so long doctors didn't know exactly what it was. I was told
it was this that and the other thing, along with PCOS. Sorry this got
so long. If you have any questions feel free to ask. I agree this is a
great forum and you will probably get lots of advice and support here.
Good luck with everything!
-Robyn
At Tue, 9 Sep 2003, Kim wrote:
>
>Hi Michelle,
>Thank you so much for your response, finally I feel like someone "is out
>there!". As I said, haven't had luck on other forums. I appreciate the
>info., yeah, I have had 3 urine tests and all came back with no bladder
>infection, no UTI, so not sure if I do have endo and it's affecting my
>bladder??? If it is endo I hate the thought of being on BC pills as I've
>had my tubes tied so not to have to bother w/that. I'm 30 and done
>having children, would they consider a hysterectomy? Or only if it's
>severe enough? Thanks again, Have a GREAT vacation!
>Kim
>
>At Mon, 8 Sep 2003, Michelle wrote:
>>
>>kim,
>>hi there. in my own personal opinion it does sound like you have endo,
>>and endo does run in families my mom has it, as i have it. it also
>>sounds like someone is wrong when they tell you, that you dont have a
>>bladder infection, right now i've had one for 2 1/2 months and i feel i
>>know all about them, and the pain that comes with the, and it sure does
>>sound like you have one, did your gyno or family doc tell you that it
>>wasnt a bladder infection?
>>you were asking what to expect from a laporoscopy have you ever had one
>>before? oh yeah you said this was your first. well first off you'll
>>feel a bit sore that first day and for a few days after, but you'll be
>>able to walk around no problem, just you'll feel weak, they fill your
>>stomach up with carbon dioxide so when you wake up you'll feel gassy all
>>over it will hurt i can tell you that, but it will go away within a few
>>days as well, just keep rubbing it and having your new husband massage
>>you it will feel better. you will probably end up with 3 little tiny
>>cuts, 2 on each side of your pelvis and one little one on your
>>bellybutton, right close to it. actually a laporoscopy isnt all that
>>scary of course if you've never had one i can understand the fear but it
>>really isnt that bad, i'm 25 i've had 4 of them plus a hysterectomy
>>already, so i'm pretty experienced about what i'm talking about here
>>hahaha. since you said that other people werent that helpful on other
>>forums you can be sure you've hit the jackpot with this one, everyone is
>>wonderful there, i love this forum i come here everyday to read what
>>people have wrote and to see who i can help for the day and who can help
>>me back. other people i'm sure will also write you and let you know how
>>you will feel after your lap, and any other questions you'd like to ask
>>us, we are all here for you. i'm going on vacation so i might not be
>>here for the next 5 days or so, so if i'm not around dont think i'm
>>ignoring you, i'm going to visit my parents and there computer is down
>>right now. but one of the other ladies here will i'm sure help you, if
>>you get this letter by tomorrow and you have anything to ask, i will be
>>here til wednesday so feel free to ask anything. nothing is to personal
>>for me.
>>take care of yourself and i wish you all the luck with your lap and have
>>a painfree week sweetie.
>>
>>--
>>Michelle I.
>>
>>At Mon, 8 Sep 2003, Kim wrote:
>>>
>>>Hello, I'm new to the forum. I'm really hoping for some support.
>>>Haven't had luck on other boards. I am scheduled for a laporoscopy on
>>>9/15 so I hope to get some answers then. For a while now I have been
>>>experiencing pain mainly in my right side. Have put it off in hopes it
>>>would just go away. But it didn't. Instead it has gotten much worse! I
>>>have severe pain in my right side, sometimes low, and sometimes up high.
>>>Now it has gone to my left side as well. I have heavy, painful periods
>>>and painful intercourse. Now whatever it is, it's affecting when I
>>>urinate. It is very painful at times, not every time. It hurts in my
>>>bladder area and I guess my uretha. I have had urine tests done a
>>>couple of times and no infections. I'm not experiencing urgency, I go a
>>>normal amount it just really hurts sometimes, atleast once or more a
>>>day. I suffer from lower back pain as well, but not sure if it's
>>>realated or not b/c I have had back surgery a few yrs ago for hurniated
>>>disks. My periods are heavy and sometimes I skip a month. I had my
>>>tubes tied approx. 3 yrs ago, after having my 3 children (1 9yrs old,
>>>and twins that are 7 yrs.). My younger sister has endo. Not sure if
>>>that matters or not. The pain has been so bad that right now they have
>>>me on pain med. it helps some, but not completely. Just looking for
>>>some answers...I just recently got re-married to a wonderful man and I
>>>want to feel good again, it seems to be affecting EVERYTHING! If this is
>>>infact endo., what can I expect as far as my laporoscopy goes??? I know
>>>this is long, thank you for taking the time to read this! I appreciate
>>>any and all feedback!!!!
>>>
>>>--
>>>Kim Bills
>>>
>--
>Kim Bills
>
--
Thanks,
RG
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